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    Scared , again

    I’ve posted here before about symptoms and a bit confused about faciculations , I’ve had ones in my calf’s for well over 2 years now without any weakness appearing at All , I’ve had numerous other things mainly anxiety and depression, odd bladder issues , sexual dysfunction . My right leg has now decided to go’s bit funny and the odd bout of pins and needles , seems a bit heavy . My right hand is also a bit clumsy but again I can write and still grip well . Has the calf thing been too long to be MND ? . I was sort of thinking more MS If anything ... I. Pretty scared at the moment as is all a bit weird .. Steve .. any advice help is welcome ... thanks

    #2
    I can be not much help really Steve, as we are all affected differently, but I did want you to know that I read your post.
    It is sometimes nice to know that someone is at least listening to what you say
    Diagnosed 2nd Jan 2020
    Both arms/shoulders affected, left worse than right.
    Progressive Muscular Atrophy suspected

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      #3
      Thank you .. it’s awful when your in a state and no one seems to be listening..it can be a very lonely world at times ... thanks again .. I’m not feeling too good and I’m not getting any answers and I’m fearing the worst

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        #4
        Hull city I think the waiting game is part of the trouble, you are full of dread and angst and no solutions.......sometimes it seems to go on forever, we have been there and I fully appreciate your situation,

        best wishes Sue
        Husband Albert diagnosed PMA Feb 21

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          #5
          Hull City...Hope you are getting tests and investigations done .I Romberg the many months of not knowing and self diagnosed myself as having MS.I even contacted local MS support group.Eventually last June got the MND diagnosis after paying for nerve conduction tests as due to covid the nhs one was postponed.As soon as I got the diagnosis the help arrived which scared me as thought I must be dying imminently.The support has continued mainly by phone but OT and physios have been out and speech therapist.Nobody wants MS or MND but I am more settled now as know what’s wrong and feel supported by MND association(I have a volunteer ring me and also monthly zoom support with other people with MND local to me in Warwickshire)Every few months I have on line one to one counselling from an nhs psychologist.Keep strong..Inreally remember the anxiety of wondering what was wrong.Best wishes..Mary

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            #6
            When you are shouting and no one's listening is the worst thing. Here you can whisper and we will hear you. Stay Strong 👍x

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              #7
              Thank you everyone , I appreciate the help ... I’m asking my GP to refer me to a neurologist as I’m just getting the anti depressants as a cure ... which obviously aren’t working

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                #8
                I can understand you being concerned over your fasiculations, as much of the information you read suggests that these accompany conditions such as Multiple Sclerosis (MS) and Motor Neurone Disease (MND).
                However, around 70% of the general population will experience fasiculations at some point and this is mostly due to benign reasons.
                It would be very unlikely that you would experience fasiculations for over 2 years without having any noticeable weakness if the reason was MND.
                Have you spoken to your GP about the symptoms you are having? Your GP can discuss with you the pins and needles and the other problems you have mentioned. If he/she feels they need investigating and could be neurological in origin, you can be referred onto a Neurologist.
                The Neurologist would then examine you for any signs of muscle weakness and if he felt it necessary could then refer you for tests such as nerve conduction which looks at nerve signals reaching the muscles.
                If you have any questions, or you would like to speak to an MND Connect adviser, please do not hesitate to call us on 0808 802 6262 or email us at: [email protected] sometimes it can help to talk things over with someone.
                With kind regards
                Jacqui Anderson
                Senior MND Connect Adviser
                MND Connect
                Contact us on 0808 802 6262 or at [email protected]

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