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  • Vaccination Help

    Because I am bed bound and unable to speak, I have been unable to get vaccinated. I received the letter asking me to book an appointment but for obvious reasons I cannot.

    I had someone from the NHS call my home a fortnight ago and demand that I give my key code to enter my house. Because of past bad experience, I no longer give out the key code, particularly to the NHS.

    Following the call from the NHS, I have pursued the vaccination through my social worker and my advocate with no success. I am now told that I am not on the system for the vaccination.

    I am not an anti-vaxxer, I want the vaccination.

    #2
    I has similar problems but after bugging my Doctor's I finally got CEV. Then the local centre contacted me for an appointment and after I said I'm CEV the community nurse is arriving at my home later this morning to give me the vaccination. And I have never really wanted it! MND works in mysterious ways don't it? 😁x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      Hi Graham

      I'd be happy to try and get this sorted for you. I'll send you a private message.

      Best Wishes
      Rachel
      MND Connect Adviser
      MND Connect
      Contact us on 0808 802 6262 or at [email protected]

      Comment


        #4
        Nice to start the day with an easy one init 😁x
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

        Comment


        • Hi Rachel,

          I have PMed you. Thank you for the support.

          Graham

          Comment


          • Hi Rachel,

            NHS staff have caused £1000s of damage to my home by flooding it, have endangered me by not closing doors and freezing me and don't follow my strict routines thereby causing me huge stress. I have survived MND for a reason!

            I will only let NHS staff in when I have a carer in, mid afternoon onwards is fine as they know.

            Comment


              #7
              Dear Graham,

              Thank you Graham, I will contact your GP surgery to let them know they will be able to gain entry from mid afternoon to administer your Covid vaccination.

              Kind regards

              Jacqui Anderson
              Senior MND Connect Adviser
              MND Connect
              Contact us on 0808 802 6262 or at [email protected]

              Comment


                #8
                I'm fascinated Graham what exactly did the NHS staff do to cause the detestation?
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                Comment


                • Hi Matt,

                  Just like you found in hospital, NHS staff know everything and take no s*** of anyone, even when in fact they may be wrong.

                  Comment


                  • No jab yet.

                    Comment


                      #11
                      Any luck?
                      when i can think of something profound i will update this.

                      Comment


                      • Hi Denise,

                        Not yet but hopefully soon.

                        My advocate, my social worker and her boss, our MNDA, as well as my GP are all working very hard to get it done. It is a bit tricky and I have to be patient I suppose. I was thinking of getting Handforth Council involved but it seems that they too can't organise a p*ss-up in a brewery.

                        A town council meeting which descended into chaos - with councillors trading insults and ultimately getting booted off the Zoom call has become an internet s...


                        How are you? xxxxx

                        Comment


                          #13
                          Hi Graham
                          not bad. Bit stressed but arent we all?

                          I can't believe it is so difficult to stick a needle in someone. Bet the Russians would have managed it 😄😉😁. I apologise if anyone is Russian.

                          love and hugs Denise xxx
                          when i can think of something profound i will update this.

                          Comment


                          • Yes Denise, the young may moan and groan but this is where the real stress is.

                            Good to know that Boris and prisoners have had a prick!

                            xxxxxxxx

                            Comment


                              #15
                              Yes there's lots of pricks about but never where you want them.

                              love as always
                              Denise xxx
                              when i can think of something profound i will update this.

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