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    Involuntary swallowing

    Hi all
    Wonder if anyone can help. For the past year i have what i can describe as an involuntary swallow, it happens when i go off go sleep and when i wake up.
    The swallow is not initiated by me, it just happens.
    I have seen a neurologist about other symptoms such as twitching and mentioned the swallowing to him and he said that had nothing to do with mnd.
    I have searched the internet and cant find anything about it either.
    Just would like to know if anyone has had this.
    Thanks

    #2
    Doodles Your post is not 100% clear - do you have an MND diagnosis?
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Hi Ellie
      Sorry i didnt make my post clear!!
      I do not have a diagnosis but have seen 4 neurologists since january with my symptoms,the last neurologist being a specialist in mnd.
      Thanks

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        #4
        Lucky, lucky you...
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          Hi
          Im sorry if my post has offended.
          My understanding of this forum, which i have been told by moderator, is that its for the diagnosed and others who are worried about symptoms.
          Thanks

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            #6
            Your post didn't offend me whatsoever.

            I was just commenting on how lucky you are not to have been diagnosed with an MND.
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              I would rather have aggressive cancer than MND. Truth told.

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                #8
                Originally posted by matthew55 View Post
                I would rather have aggressive cancer than MND. Truth told.
                I tend to agree, Matthew. Louise has said that all along. An awful lot of terminal cancers still allow you to go for days out, go out for a meal, have a chat with your family and friends, do gardening and DIY. All these activities have been taken from me in the space of a year.
                Each day is made easier with a bit of humour.

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