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    PIP Help

    Hi Rachel,

    I have recently received a letter from Government asking me to renew my PIP. The letter is unlawful on 2 counts and potentially exposes me to fraud.

    The letter asks that I use a 3rd party to assist a Government official to answer personal questions!!

    I ask that either my PIP is renewed automatically or that the Government provides a site where I renew myself.

    Graham
    Copyright Graham

    #2
    My PIP was due to be renewed in June 2021. However earlier this month they say it’s been extended for 10 years and I don’t have to apply to renew. I doubt that I will be here in ten years anyway.

    It may be worth contacting them Graham to clarify what the actual position is and mention you have heard of no need to renew for 10 years.

    Richard
    Richard

    Comment


      #3
      Graham, if you can speak then ring the PIP helpline. If not get somebody to do it for you whilst you are with them. Then when they ask you if you authorise this person I hope that you can say β€˜yes.’ Good luck, Lynne
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

      Comment


        #4
        Hello Graham

        I would suggest that you contact our designated MND benefits advice service about the renewal of your PIP claim.

        You can contact them at www.mndassociation.org/benefitsadvice or 0808 801 0620

        Best Wishes

        Andrea
        MND Connect Adviser


        MND Connect
        Contact us on 0808 802 6262 or at [email protected]

        Comment


          #5
          An ex-carer is due to be sentenced this week Lynne, 5-10 years at Her Majesty's Pleasure. It is essential that we are able to run our own affaires, particularly with the advent of the Internet xxxx
          Copyright Graham

          Comment


            #6
            Good result then.
            Denise xxx

            Comment


              #7
              My PIP just went up by over one pound a week. πŸ€”
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

              Comment


                #8
                My pip has just been renewed as its been 3 years since I was diagnosed. They needed a new DS 1500 ( How can a DS 1500 expire and what a waste of my doctor's time ! )

                As my speech is ok so they said it was fine to conduct the interview over the phone..
                Can you walk 20 metres unaided.? .. No I can't stand up.
                Can you walk 20 metres with help? No I can't stand up.
                Can you walk 10 metres ? ...Nope.. I still can't stand up.
                We have to ask these question if you want to qualify for the award. They probably thought I wasn't being serious as the repeated questions were making me laugh.

                I am glad to receive financial support and I could see the funny side of this interview. However it's such a waste of time and money. .. money which could be used to help people. X

                Comment


                  #9
                  Dear Admin,

                  I have been in touch with the CAB at Cardiff and not made any progress whatsoever. My PIP claim is due to end in a fortnight.

                  I am asked to provide consents and the CAB is not able to protect my data, thereby overtly discriminating against me. I wish to access the service just like any able bodied person and have resisted the attempt of discrimination.

                  I hope you understand and are able to help me renew my PIP.

                  Regards

                  Graham
                  Copyright Graham

                  Comment


                    #10
                    I’m sorry for your bad and stressful PIP experience Graham. Good luck with it getting sorted out before your deadline. Lynne x
                    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                    I'm staying positive and taking each day as it comes.

                    Comment


                      #11
                      Hi Graham

                      I have contacted our benefits team to find out more about what is happening and I will get back to you ASAP.

                      Best Wishes

                      Rachel
                      MND Connect Adviser
                      MND Connect
                      Contact us on 0808 802 6262 or at [email protected]

                      Comment


                        #12
                        Hi Graham

                        I've spoken to our benefits team and they've confirmed that they are able to help you and you can access their service. They are still dealing with your enquiry and are in the process of getting back to you with regards to it.

                        Best Wishes

                        Rachel
                        MND Connect Adviser
                        MND Connect
                        Contact us on 0808 802 6262 or at [email protected]

                        Comment


                          #13
                          No Rachel,

                          They are not able to help unless I provide them with my confidential health data and I have to sign/give consent in the event they give it away accidentally.

                          As is always the case, Government have not a clue that it is discriminating against us and do not care to even bother. We are a burden and are expected to die.

                          And true to form, MNDA whistle and look the other way.
                          Copyright Graham

                          Comment


                            #14
                            Ministers have proven today that they consider us the general public to be here cattle only fit for slaughter with debating whether to cease lock down. Any early cessation will only lead to more deaths.😒😠
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                            Comment

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