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PIP Help

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    PIP Help

    Hi Rachel,

    I have recently received a letter from Government asking me to renew my PIP. The letter is unlawful on 2 counts and potentially exposes me to fraud.

    The letter asks that I use a 3rd party to assist a Government official to answer personal questions!!

    I ask that either my PIP is renewed automatically or that the Government provides a site where I renew myself.

    Copyright Graham

    My PIP was due to be renewed in June 2021. However earlier this month they say it’s been extended for 10 years and I don’t have to apply to renew. I doubt that I will be here in ten years anyway.

    It may be worth contacting them Graham to clarify what the actual position is and mention you have heard of no need to renew for 10 years.



      Graham, if you can speak then ring the PIP helpline. If not get somebody to do it for you whilst you are with them. Then when they ask you if you authorise this person I hope that you can say ‘yes.’ Good luck, Lynne
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.


        Hello Graham

        I would suggest that you contact our designated MND benefits advice service about the renewal of your PIP claim.

        You can contact them at or 0808 801 0620

        Best Wishes

        MND Connect Adviser

        MND Connect
        Contact us on 0808 802 6262 or at [email protected]


          An ex-carer is due to be sentenced this week Lynne, 5-10 years at Her Majesty's Pleasure. It is essential that we are able to run our own affaires, particularly with the advent of the Internet xxxx
          Copyright Graham


            Good result then.
            Denise xxx


              My PIP just went up by over one pound a week. 🤔


                My pip has just been renewed as its been 3 years since I was diagnosed. They needed a new DS 1500 ( How can a DS 1500 expire and what a waste of my doctor's time ! )

                As my speech is ok so they said it was fine to conduct the interview over the phone..
                Can you walk 20 metres unaided.? .. No I can't stand up.
                Can you walk 20 metres with help? No I can't stand up.
                Can you walk 10 metres ? ...Nope.. I still can't stand up.
                We have to ask these question if you want to qualify for the award. They probably thought I wasn't being serious as the repeated questions were making me laugh.

                I am glad to receive financial support and I could see the funny side of this interview. However it's such a waste of time and money. .. money which could be used to help people. X