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    Worsening Symptoms

    Firstly, I appreciate that anyone will read this and take the time to reply.

    I’m currently concerned about a few symptoms that have progressed over the last 6-8 months.

    In the summer of 2020 I had a few stomach issues that seemed to clear themselves up, however as that was coming to an end I randomly started to get floaters (spider web vision). This was not the odd 1-2 but a significant amount all at one time.

    I saw an optician who said they were not worried and it was relatively normal for someone of my age 33M. Steadily the floaters were joined by eye pain and headaches, to the point where I had an MRI. The results from my family doctor were that I had MS, however seeing the neurologist weeks later, she dismissed that idea outright.

    I chose to side with the neurologist and move on, however ever since then issues have increased not decreased. I have relatively consistent twitches all over my body, right calf most often. I have consistent pain in hands and feet with a disturbing loss of muscle mass in both feet.

    I have indents in the thenar muscle of my right hand that were not there previously and achy thumbs on both hands. I’m athletic and continue to run with increasing pain in ankles/feet and lift weights with wrist/hand shakes following.

    I often see that weakness is a tell tale sign of MND, and so far I have had none, that I consider to be anyway.

    My apologies for the long winded message. I’m not sure this is the right place to turn, however I appreciate any input.

    #2
    Wrong place mate. No doctors on here.
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      Hi .it sounds like you need to go back to see neurologist again via your GP as symptoms are increasing.Best wishes and hope you get an explanation / diagnosis soon
      Mary

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        #4
        I agree that you need to go back to your GP and maybe get another neurological referral. I’m sorry about your continuing problems but hopefully by going back to your GP will get you on to the road to an answer and appropriate treatment. Lynne
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

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          #5
          everyone has a different mnd. i would go back to the doctor. its not for us to say because we just cant diagnose we are only here to support each other. go see your doctor its the only thing you can do.
          denise xx

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            #6
            Dear GD1987,

            Thank you for your forum post. I am sorry to hear that you are experiencing these symptoms which are concerning you.

            As suggested by the forum members, you do need to go back to the neurologist to have these symptoms investigated. We would always advise anyone that is experiencing unusual and worsening symptoms to consult their GP or neurologist.

            You are welcome to contact us at MND Connect if you have any further questions. We are available on 0808 802 6262 Monday to Friday from 9am-5pm and 7pm-10:30 pm.

            Kind regards,
            Prachi
            MND Connect Adviser
            MND Connect
            Contact us on 0808 802 6262 or at [email protected]

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              #7
              Exactly what I'm going tru. I think because I don't have clinical weaknesses YET.
              They tell me know way you have ALS. Even with atrophy in 2 places and aches and pains and twitching and Emg showing Chronic Denervation they don't want to make that decision.. That continues to leave me in stress Nd anxiety every day 24/7 .....

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                #8
                Whatever is causing your symptoms, the symptoms themselves are etremely scary, and i understand why you are fearing the worst. I am not aware of the list of ailments which might cause similar symptoms so can only trust that you finally get a definate answer from someone who does.
                Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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                  #9
                  Originally posted by Russ3465 View Post
                  Exactly what I'm going tru. I think because I don't have clinical weaknesses YET.
                  They tell me know way you have ALS. Even with atrophy in 2 places and aches and pains and twitching and Emg showing Chronic Denervation they don't want to make that decision.. That continues to leave me in stress Nd anxiety every day 24/7 .....
                  Be careful what you wish for.
                  I’m going to do this even if it kills me!

                  Comment

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