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    Shoes!

    Hello
    At the moment the only area MND (recently diagnosed) is affecting is my left foot and leg. I am unable to wear my normal shoes. I am wearing a pair of Clarks Sandals as they are the only ones I can get my foot in. I can no longer push my foot into a shoe and I have no feeling in it.
    I don't know where to look or indeed buy specialist footwear that is suitable for swollen and no feeling in my foot.
    Can anyone give me any advise? It may seem trivial but its important to me.
    Thank you.

    Ann

    #2
    Hi Anne,
    Now I am feeling smug as I can actually give you some advice here!
    I had exactly the same problem and was advised on a previous thread to try out Cosyfeet. They have a great website.
    I bought a pair of cosy boots last week and am still thrilled with them.
    They come in extra wide sizes and even I can get my hideous swollen feet in them.
    There is a recent thread about 'curly toes' that has lots more advice.
    Unfortunately, my skills are not up to linking them!!

    Marigold

    Comment


      #3
      Hi Ann,

      I wear an ankle brace and I find that sketchers are roomy enough to accommodate it. Sandals may prove to be a trip hazard.

      Best wishes,
      Barry
      I’m going to do this even if it kills me!

      Comment


        #4
        Hi Ann,

        I'm the bossy one of the forum there's always one, eh !!

        But... it's a good idea to try and reduce the swelling in your foot and not having feeling in your foot should be checked out by a GP/Nurse - it's not directly attributable to MND, it's more to do with the swelling.

        Try to keep the joints moving by doing range of motion exercises (or having someone do them for you), put your feet up when you can and do a gentle foot massage. Some people use a pneumatic compression device for swollen legs and feet, with good results.

        Hope you get sorted with comfy shoes (Skechers are also popular)

        Take care,

        Love Ellie..
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          Hi, sketchers, hotter, reiker have all been good makes for me. I wear a brace on each foot so have scoured the market for wider fitting, light shoes and boots that don't look frumpy.

          Comment


            #6
            Thanks to you all for replying. The suggestions are a big help. I will research the make of shoes mentioned. Thanks again. Ann

            Comment


              #7
              How do the ankle braces work, we have a problem with Ankles going over when trying to weight bare, got appointment at hospital to see about getting something.

              Comment


                #8
                Annie, I am the same my MND all down my left side. Suggest look on Cosyfeet web site. I have had few pairs shoes. Few months had new pair sandals which had good heal and soles with Velcro straps. I also have sandals and again Velcro straps. Last year got pair black shoes with good inside area and again Velcro straps. Best wishes John

                Comment


                  #9
                  Originally posted by Jaxx View Post
                  How do the ankle braces work, we have a problem with Ankles going over when trying to weight bare, got appointment at hospital to see about getting something.
                  Hi Jaxx,

                  The orthotics department at my hospital gave me an ankle brace following a fracture. My right ankle has always been weak following diagnosis and has been the cause of many falls. I decided to research a better brace and found that Aircast works well.

                  Best wishes,
                  Barry
                  I’m going to do this even if it kills me!

                  Comment


                    #10
                    Hi Barry
                    Just read your message about an ankle brace. That sounds like that would be very helpful to me. Regards
                    Ann

                    Comment


                      #11
                      Annie

                      You say you have no feeling in your left foot. May I suggest you get that checked. MND affects the motor neurones, but the sensory nerves are not normally affected. It's one of the odd quirks of the disease! So there might be something else going on.

                      Doug

                      Comment


                        #12
                        Hi Doug
                        Thank you for your suggestion. I have met MND local and regional people for the first time this week. I am being referred to various medical tests - feet being one of them. Annie

                        Comment


                          #13
                          Hi Barry

                          Would you be able to upload a photo of you ankle brace so I can have a look? I have braces for both feet as my ankles are very weak but they are more like space boots which are really uncomfortable and don’t fit into any footwear

                          Thanks

                          Jen

                          Comment


                            #14
                            Hi Jen,

                            I have two types which are both made by Aircast. The black one I wear outdoors because it is more rigid and the white one is more difficult to get on but it is more comfortable. They have slightly different fastenings but both are Velcro. I can wear most types of footwear but for me I love sketchers.5203A43F-6FFA-4505-81BC-02F42EEBA895.jpgA1F5FADE-BBAB-4B80-AE22-201E3AF20214.jpg
                            I’m going to do this even if it kills me!

                            Comment


                              #15
                              Hi Jen,

                              I wonder if the OT/Physio in your Clinic would give you a better ankle support than your current, unsuitable one?

                              Some of the ones available online are moulded at a 60 degree angle (which might not be right for your ankle) and others are adjustable.

                              Love Ellie.
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              Comment

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