today was Micks first neurology apt at Preston since diagnosis in July. Ive taken time off and just as getting ready a voicemail received cancelling it because not under that specialist under another!
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That's so frustrating for you both Shrew - cancelling so late; day off work...
Mick is better off seeing a Neuro who knows something about MND, rather than a General Neurologist, but it's annoying the appointment was made with the wrong Consultant in the first place.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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This is most frustrating for you both.
Cancellations can't be helped but it does feel like a gut wrench when important appointments are cancelled.Comment
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