today was Micks first neurology apt at Preston since diagnosis in July. Ive taken time off and just as getting ready a voicemail received cancelling it because not under that specialist under another!
-
-
That's so frustrating for you both Shrew - cancelling so late; day off work...
Mick is better off seeing a Neuro who knows something about MND, rather than a General Neurologist, but it's annoying the appointment was made with the wrong Consultant in the first place.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
-
This is most frustrating for you both.
Cancellations can't be helped but it does feel like a gut wrench when important appointments are cancelled.Comment
Comment