Anybody know why my wifes feet are swollen and chilbanes, its driving her round the bend.
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Hi David;
It's worth speaking to her specialist or the team about this as they might be able to point you to the right professionals.
It is not unusual for people with Mnd to have swollen feet. I think it is because our muscles in the lower legs don't work so well and loose their size.
You could maybe see her doctor and see if he will sort out some compression stockings for the lower legs, the hospital or hospice should have a specialist who can size them and show you how to put them on properly.
Raising the feet also helps and trying to relax the lower leg muscles might also help.
I think that the swelling and lack of blood flow could also be the cause of the chilblains. We also quite often get cold or sometimes hot feet, so you will have to manage that as well.
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Hi David,
I'm so sorry to hear that your wife has chilblains and swollen feet. I think as already suggested, in the first instance I would seek guidance from her GP as this is not necessarily linked to her MND.
Ruth
MND ConnectMND Connect
Contact us on 0808 802 6262 or at [email protected]
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Hi David
my feet are swollen to twice the size and mostly stone cold. I wear orhtotics on both legs but I am in a wheelchair all the rime. The orthotics give me stability to shuffle round in the chair and heklp transferring onto the loo as I live alome.
The MND nurse and the hospice both say it is because of lack of use of legs and I need to raise my legs higher than my heart or hips. This is the only way to get them down,Thjey are also suggesting a rise and recline bed to help and to lie on it for half an hour after lunchwith legs raised too.
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Originally posted by broken_nails View PostAre you sure it's chillblanes? My feet hurt all the time and sometimes go red and blotchy but my hands also go red and blotchy but do not hurt. Weird things happen when nerves are not working as they should
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Good afternoon all
Originally posted by jaffabeach View PostHi there I would suggest speaking to a specialist MND nurse
As the damage I have is limited to my hands and arms at the moment I don't get chilblains in my feet because they stay warm as they are well circulated by blood and lymph.
But I have to be really careful when I'm out in the cold to keep my hands warm otherwise like somebody else above they go red, blue and blotchy and get stiffer and stiffer.
Today for example I was stupid enough to be doing some work outside for which I still have the dexterity and I was getting worse and worse and not holding things and realised what was going on. So I came inside and warmed my hands up in the washing-up water which was still fairly hot and my hands recovered quite quickly
Best to all,
AndyWarmly
Andy
​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulder– Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"
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