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  • EvelynMW
    replied
    Not very fair eh? Migraines and MND? Mind you, it is often something ive done that leads to migraine, usually being stupid!

    Leave a comment:


  • Ellie
    replied
    Me too Evelyn, the rapimelts xx

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  • EvelynMW
    replied
    Ellie I'm a Zolmig triptan. They moved me onto another cheaper one once, but had to go back.....

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  • matthew55
    replied
    Something changed today as I suddenly staterd getting notification emails. 🤔🤭😁🤗😍 XX

    Leave a comment:


  • Admin_MND
    replied
    Our ICT team have told us that there was an issue with gmail addresses getting through to MND Connect over the weekend but this was resolved this morning.

    So if your email was a gmail address EvelynMW it maybe worth trying again as it should get through now.

    Hope that helps,

    Forum Admin.

    Leave a comment:


  • Ellie
    replied
    EvelynMW As a fellow migraine getter, I fully sympathise and thank pharma for developing Sumatriptan!!

    Have a lovely day out today 🌞 xx

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  • Admin_MND
    replied
    Hi EvelynMW

    I'm assuming it was the MNDConnect account that you PM'd over the weekend? As we've not received anything?

    We're not aware of any issues with the [email protected] email address, but have flagged it internally with the team and our ICT team to look into. Feel free to PM us in the meantime or send a direct email to [email protected] and we can pick it up and pass it on.

    Hope that helps,

    Forum Admin.

    Leave a comment:


  • EvelynMW
    replied
    Ellie I did PM them, but it was at the weekend; they are online today (Tuesday), so i will hope for a response soon.

    I lost Monday, migraine. Woke with a headache, didn't take my special pill, (idiot), tidied our bedroom (following last weeks short break), had a shower and washed my hair, then my head really kicked off. Pill, bed, with fan full on, Hubby brought lunch up - the smell increased my nausea. He took it away, i threw up, took my second pill and finally got off to sleep. Woke up 7 pm. Took a 3rd pill to knock off the remaining symptoms, and back to bed after 10 pm...

    Have .not eaten yesterdys lunch: stuck to bread and crackers only, safer.

    I am very lucky, it is rare that my migraines go over 1 day - the pills i take are my magic (triptans).

    Sunday, a friend took me to the Cambridge Botanic Garden. Must pick up a map next time! Was very hot and was probably the cause of the overnight headache: never did get on well with sunshine, even though i wore a big brimmed hat!

    Shopping later today and a dog walk. Hamerton Zoo Park tomorrow - if the thunderstorms stay away.

    Hmm, obviously feeling chatty today, only intended to answer @Elllie! Enough rambling, 1 more spell check, and post.

    First day online since Saturday. Spell check complete, crossing my fingers and....

    Right, spell check done

    Leave a comment:


  • Ellie
    replied
    EvelynMW It's not only you Evelyn, you'll be somewhat pleased to hear. I sent an email to MND Connect to see what happened and had the same result.

    It's a "smtp; 550 permanent failure for one or more recipients", which is probably an anti-spam filter but one which may block all emails from unknown senders. Hopefully they can find a solution, but do PM them.

    Love Ellie.

    Leave a comment:


  • Gordan1111
    replied
    Suppose it's possible it's run out of space. Yes maybe better luck with PM

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  • EvelynMW
    replied
    I think i will try to PM them. No, when i send an email, i am told that their server is blocking me from writing - I am sure it is nothing personal, but...

    Leave a comment:


  • Gordan1111
    replied
    Hi Evelyn. When you say blocked do you mean bounces back undelivered? Do you have another email address so could send a test to see that works.

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  • Ellie
    replied
    They'll be back on Tuesday because it's long weekend, Evelyn.

    You can send them a PM, they are a member like you and I are, and they'll see it on Tuesday morning, and they can sort out whatever is wrong with the emails too. xx

    Leave a comment:


  • EvelynMW
    started a topic How to contact you only

    How to contact you only

    I have tried 3 times to send an email to the mndconnect email address, each time, my email is blocked. As it is something i don't want everyone to see, unless approved, i am asking why my email gets blocked.

    thank you
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