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    #16
    Hi all, it wasn’t good news i’m afraid.

    Very rapid onset so won’t have time to get a proper diagnosis. Still walking and talking so seems a strange manifestation.

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      #17
      Hello Edinburgh21,
      Sorry that this happens to anyone, but you are in the right place. So far you are walking and that is good news. Never give up!

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        #18
        Chin up and Stay Strong. You're not alone my friend.👍😁🤗🌷xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          #19
          Hi Edinburgh21 sorry to hear you're bad news....you'll find lots of good advice and support on here. Now you have a diagnosis support should start clicking into place from all the neuro medical teams
          Take care...just a day at a time
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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            #20
            Originally posted by Edinburgh21 View Post
            Very rapid onset so won’t have time to get a proper diagnosis. Still walking and talking so seems a strange manifestation.
            🤨 I am rather confused

            Who has told you what? 🤔🤔

            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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