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    #16
    The MND nurse has said she will ask the consultant to fill in the DS1500 form. I know there was a push towards it being 12 month life expectancy and not 6 months. Going to read the link Prachi has suggested. Not wishing to sound morbid but assume if we get PIPS via DS1500 form then we can claim terminal illness under a life insurance policy (here's hoping) as I want to try and assist my partner and family and remove the financial worries. (Im worth more dead than alive !)

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      #17
      Originally posted by Worsleybird View Post
      (Im worth more dead than alive !)
      Me too - my husband might be able to retire early with his windfall of my life insurance ๐Ÿ˜๐Ÿ˜

      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      โ€‹

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        #18
        Hi Denise..if you husband is of state retirement age he may need to apply for Attendance Allowance with a DS1500 to go with application
        Not sure if Stephen doesnโ€™t qualify for PIP as Over state retirement age????
        best wishes
        Mary

        I did my PIP form via ringing Pip helpline(0800 1214433) and forwarded as Ds1500.Benefit awarded very quickly
        Regards
        Mary

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          #19
          So Mary am I right in saying if the Consultant sends off your PIP, you need to ring the Pip helpline to tell them? Or you dont need to?
          Also do you still have to fill in the 44 page PIPS form (Im guessing not ?)

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            #20
            I have just had my PIP renewed after three years. I needed a new DS1500 . The MND nurse fills mine in and gives it to me to send to the DWP. ( keep a copy !) If you ring the DWP there is a different department? If you have a DS 1500.. You still have to answer questions though or have someone to answer them for you.

            Love Debbie x

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              #21
              I was diagnosed in Jan with MND. I applied for PIP in April. My MND co ordinator talked me through the form , on the phone. Two days ago I had a telephone assessment. It took nearly two hours . Asking me all the same questions. At one point I got very upset and told the lady that I thought she didnโ€™t believe me. Some of the things she asked seemed so irrelevant. Asking about my eye drops I have used for years! Can I get on a bus? I can only just get in the car! I was completely exhausted afterwards . The next day I get a text telling me it could be another 8 weeks.

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                #22
                Hello everyone

                We do have a benefits team who are able to answer any questions about benefits, help with applying for benefits and able to help if there are issues with claiming benefits. They can be contacted on 0808 801 0620 or at [email protected]

                Best Wishes

                Rachel
                MND Connect Adviser
                MND Connect
                Contact us on 0808 802 6262 or at [email protected]

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                  #23
                  Worsleybird....I rang The PIP helpline and the person who answered went through a few questions as I said I had a DS1500.She completed the form and told me where to forward the DS1500 too.Awarded high rate very quickly.
                  Good Luck
                  Mary

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                    #24
                    Tks All, got pips on 12 points disability and ESA (my sick pay is due to stop in October). Also a very speedy blue badge. Welcome but just another nail in the coffin on the MND rocky road.

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                      #25
                      Worsleybird
                      Forum Member
                      Worsleybird great you've got that PIP...at least gives options. Yep a rocky road ๐Ÿ˜๐Ÿ˜˜
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

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