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  • LindaB
    replied
    Worsleybird great you've got that PIP...at least gives options. Yep a rocky road 😏😘

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  • Worsleybird
    replied
    Tks All, got pips on 12 points disability and ESA (my sick pay is due to stop in October). Also a very speedy blue badge. Welcome but just another nail in the coffin on the MND rocky road.

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  • Mary C
    replied
    Worsleybird....I rang The PIP helpline and the person who answered went through a few questions as I said I had a DS1500.She completed the form and told me where to forward the DS1500 too.Awarded high rate very quickly.
    Good Luck
    Mary

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  • MNDConnect
    replied
    Hello everyone

    We do have a benefits team who are able to answer any questions about benefits, help with applying for benefits and able to help if there are issues with claiming benefits. They can be contacted on 0808 801 0620 or at [email protected]

    Best Wishes

    Rachel
    MND Connect Adviser

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  • LesleyB
    replied
    I was diagnosed in Jan with MND. I applied for PIP in April. My MND co ordinator talked me through the form , on the phone. Two days ago I had a telephone assessment. It took nearly two hours . Asking me all the same questions. At one point I got very upset and told the lady that I thought she didn’t believe me. Some of the things she asked seemed so irrelevant. Asking about my eye drops I have used for years! Can I get on a bus? I can only just get in the car! I was completely exhausted afterwards . The next day I get a text telling me it could be another 8 weeks.

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  • Deb
    replied
    I have just had my PIP renewed after three years. I needed a new DS1500 . The MND nurse fills mine in and gives it to me to send to the DWP. ( keep a copy !) If you ring the DWP there is a different department? If you have a DS 1500.. You still have to answer questions though or have someone to answer them for you.

    Love Debbie x

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  • Worsleybird
    replied
    So Mary am I right in saying if the Consultant sends off your PIP, you need to ring the Pip helpline to tell them? Or you dont need to?
    Also do you still have to fill in the 44 page PIPS form (Im guessing not ?)

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  • Mary C
    replied
    Hi Denise..if you husband is of state retirement age he may need to apply for Attendance Allowance with a DS1500 to go with application
    Not sure if Stephen doesn’t qualify for PIP as Over state retirement age????
    best wishes
    Mary

    I did my PIP form via ringing Pip helpline(0800 1214433) and forwarded as Ds1500.Benefit awarded very quickly
    Regards
    Mary

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  • Ellie
    replied
    Originally posted by Worsleybird View Post
    (Im worth more dead than alive !)
    Me too - my husband might be able to retire early with his windfall of my life insurance 😍😍

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  • Worsleybird
    replied
    The MND nurse has said she will ask the consultant to fill in the DS1500 form. I know there was a push towards it being 12 month life expectancy and not 6 months. Going to read the link Prachi has suggested. Not wishing to sound morbid but assume if we get PIPS via DS1500 form then we can claim terminal illness under a life insurance policy (here's hoping) as I want to try and assist my partner and family and remove the financial worries. (Im worth more dead than alive !)

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  • Lynne K
    replied
    Smashing Denise x

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  • denise
    replied
    Mnd nurse here tomorrow. I'm just filling in address and things.

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  • Lynne K
    replied
    Originally posted by denise View Post
    Need to be fit and healthy to fight people shouldn't have to do all this. Its degrading almost begging.

    Stephen doesn't qualify for pip but he couldn't even fill in the form. Doing his ds1500 today but with help tomorrow. Also have a carers thingy to look at.
    Denise who’s doing Stephen’s DS1500? A professional needs to do it. Good luck, Lynne x

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  • denise
    replied
    Need to be fit and healthy to fight people shouldn't have to do all this. Its degrading almost begging.

    Stephen doesn't qualify for pip but he couldn't even fill in the form. Doing his ds1500 today but with help tomorrow. Also have a carers thingy to look at.

    Leave a comment:


  • Ellie
    replied
    Oh. My. Days... 4-6 months 😲😲 😩😩

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