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    #16
    Originally posted by Cae1977 View Post
    ... all I want is a straight answer off someone
    You're looking in the wrong place - that's a Doctor's role, which is why you have to follow up with a medical professional.

    You're wasting your time by asking the same questions on this MND Forum over and over and over and over again because you simply cannot get that "straight answer" here.

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #17
      Benign fasciculations are not to worry about. They may keep you up at night, but if they are not detected in an EMG, it probably is not MND. Swallowing difficulty can occur at any stage of Parkinson's disease (PD). There are other things that can cause these symptoms. Only a professional can properly diagnose your symptoms.

      Take a deep breath, and think about the compulsive nature of your inquiries. Obsessions like this can be considered a mild, yet troubling, mental health issue. Medical professionals deal with this type of thing every day, so gauge yourself. Do you trust your doctors? Then talk to them because they are the ones that are responsible to you. If you do not, find a new caretaker who you can trust. Write a log, and hand it over to your doctor. Let him worry about it.

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        #18
        Hi mnd connect

        My neurologist has reffered to a dr srinivasan a specialist mnd neurologist at the mnd clinic in Birmingham queen Elizabeth hospital due to throat muscle weakness hypopharynx and pirifossa forma , I thinck they want to start the testing all over again , all that was found on the 2 emg tests were ulnar dysfunction and 4 x fasiculations on last emg , no other findings were found , would the last emg I.had off picked up something if it was there .there was a 9 month gap between the 1st emg and last one .

        All.the best

        Craig

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          #19
          Hi Craig

          I am sorry that this is still a concern for you. The only person who can answer your questions is a neurologist. We are always happy to speak to you over the phone as sometimes it can help with your concerns so please do contact us if you need to on 0808 802 6262.

          Best Wishes

          Rachel
          MND Connect
          Contact us on 0808 802 6262 or at [email protected]

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