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    Hospice visit.

    We have our first visit from the local hospice next week.
    not sure what to expect.

    #2
    Shaun wheadon
    Forum Member
    Shaun wheadon MND Connect don't work weekends Shaun, maybe some forum members could give you their recent experiences in the meantime? xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Thanks Ellie wasn’t sure where to post this.

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        #4
        Hi
        Shaun wheadon
        Forum Member
        Shaun wheadon

        Each hospice tends to work a little bit differently but they can be an excellent source of support. People's perceptions of hospice can often be a little bit different to what hospices actually do. They are there to ensure that someone has the best possible quality of life and provide symptom management which can be very beneficial when someone has MND.

        We produce an information sheet on hospices which might be useful and can be found here https://www.mndassociation.org/app/u...ive-care-1.pdf

        If you have any questions or concerns then please do feel free to contact us at MND Connect on 0808 802 6262 or at [email protected]. We are available Monday-Friday 9am-5pm and 7pm-10:30pm.

        Best Wishes

        Rachel
        MND Connect Adviser
        MND Connect
        Contact us on 0808 802 6262 or at [email protected]

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