Finding CHC providers

[Olicana]

Hi yes got the full CHC last week but who & how do we find a provider as we want to manage it ourselves ?

[LindaB]

Hi Olicana the CCG should source care providers/agencies for you. They should support you if you choose a personal health budget. There should be a named link person. 👍🏻

[Ellie]

LindaB Mary C I have to say that it's great to have ex Social Workers on the forum who readily give advice 👍👍

[Mary C]

[email protected]
Linda B has given you the guidance about CHC question you asked.I suggest you ringCHC office after bank holiday and get a name, contact details of who is going to support you.

You need to know their process and how they intend to keep you fully informed.You would hope they want to discuss the care needed, how they source providers including how to locate providers recent inspection reports.

You need to ensure you are kept fully informed and that the care provider meets you both pre agreeing any care .

Hope it goes well for you.
Best wishes
Mary

[MNDConnect]

Hello Olicana

If you get NHS Continuing Healthcare (CHC) funding you should be supported by a CHC co-ordinator or case manager, to plan the ongoing care. They will discuss with you (or your representative) what your preferences are. If your care will be delivered at home, you may be able to receive your CHC as a personal health budget.

More information on NHS Continuing Healthcare (CHC) and Personal Health Budgets can be found in the MND Information sheets at https://www.mndassociation.org/app/u...Healthcare.pdf and https://www.mndassociation.org/app/u...-budgets-1.pdf

Kind Regards
Andrea

[Nettie]

MNDConnect hi I’ve just been turned down for CHC but they agreed that I need support care morning & night and showering, so I have to fill a finance form in, and it’s very long form I don’t understand most of it and even having trouble turning the pages 🤦🏼♀️ I thought if you had a ds1500 you didn’t have to fill these long forms out 🤷♀️ It’s all too much stress. Janette x

[matthew55]

My CHC was arranged by my angel at the council run community neurology department. I didn't know what CHC was before I was told I had got it. 📃👀👍😁xx

[Nettie]

My CHC was arranged by my angel at the council run community neurology department. I didn't know what CHC was before I was told I had got it. 📃👀👍😁xx

Glad you got your funding 👍 that’s probably because you live on your own, I have Phil but he’s not well himself now xx

[LindaB]

Nettie you can appeal the CHC outcome if you disagree.

All care provided by social services is unfortunately means tested....I'd always advise you need a social worker to support you through forms and liaise with other professionals on your behalf.

If the CCG are not providing your care then you need a social services assessment...Community Care Act assessment....to establish a robust support plan.

A social worker can also help you appeal the CHC decision👍🏻xx

[MNDConnect]

Dear Nettie,

I am sorry to hear that you have been refused CHC funding. You can make an appeal if you disagree with their decision. I would suggest that you contact an organisation who can provide you with information on how to appeal a decision. Beacon will give you 90 mins free advice, which is funded by NHS England, their number is 0345 548 0300
It can also help, if you appeal, to submit written evidence and support from your health professionals. This helps to build a picture of how your condition is affecting you.
Although the DS1500 can help to fast track benefits, unfortunately it doesn't help with a financial assessment from your local authority.
Do you have someone who can help you complete the forms?
If you have any questions, please do not hesitate to contact us
Kind regards
Jacqui Anderson
Senior MND Connect Adviser

[Nettie]

Yes they said we can reapply when my needs are greater. And we already did an assessment when we applied for DFG for adaptations with the same council I don’t see why we have to do it again, oh well I suppose I better crack on 🤷♀️
Thank you,will try and find somebody to help us. Janette x

[Mary C]

Nettie
Sounds like care will be arranged via social services which is means tested.
The forms are lengthy but a lot may not be applicable.It’s basically a form to determine income , expenditure, what assets you own.etc
Best wishes
Mary x

[Nettie]

Mary C yes I might have another go tomorrow I wasn’t feeling my best this morning 🙁 I’ll see how I go on tomorrow thanks Janette xx

[LindaB]

https://www.continuing-healthcare.co.uk/continuing-healthcare-guidance/continuing-healthcare-fast-track-guidance

We all also need to consider fast track funding....see link. At some point it may apply....I know I'm like a stuck record but you can't beat having a social worker to support through the minefield😇