Anxious

[Joeglas]

Sorry about this but i so anxious.

I have had pain, stiffness and weakness in my left arm for 9 mths. Was referred to orthooaedics who conducted a mri of my cervical and thoracic area. She did also say that she was concerned that my symptoms where due to a nurological problem and did anyone in my family have any neurological illnesses to which i answred no.
As a result i decided to pay privately to see a Neurologist who cinfirmed that i had brisk reflexes but no evidence of MND
Yesterday i received call from orthopaedics to say that i had a slight disc out of place at C5 but this shouldnt be causing my problems and due to this she was referring me to a Neurologist. I explained to her that i had previously seen a Nurologist privately but she said that no she was referring me and again asked about family history etc.

I know you cant offer medical advice but can you reassure me

[Joeglas]

In addition i was told waiting time to see a neurologist is 52 weeks for routine and 16 weeks for urgent

[PeterPan]

I'd only say that you are a very, very long way from having a diagnosis of MND. Indeed a neurologist has even told you that there’s no evidence of MND.

Don’t let fear and anxiety overwhelm you because both are so destructive to wellbeing. Easy to say, I know… but think about it. Best wishes

[Joeglas]

Thanks

[Aidan in Shrewsbury]

I think your neurologist would have recognised MND if you had it so hopefully you will be ok. A neurologist will be very familiar with MND and would almost certainly recognise it. Sounds like a disc problem and the other doctor was being cautious. Good luck.

[Joeglas]

Thanks, it was the blooming orthopaedic wbo hhas got me so anxious. She said i had a disc slightly out at c5 but shouldnt be causing my symptoms amd was referring me to neurology and kept asking repeatedly if had any family members with a neurological illness.
when i look on line my symptoms could be caused by an issue in my c spine as well.

[Joeglas]

My symptoms are:

Pain and stiffness in shoulder to elbow.
Pain, stiffness and pins and needles in hand and fingers.

[Joeglas]

Oh and biting my tongue during the night

[Aidan in Shrewsbury]

I am no expert and I wouldn’t want to give you false hope but from what you have said it doesn’t sound particularly like MND to me. It looks like the neurologist thinks that too. You obviously have a problem that needs further investigation. Have you had an mri or ct scan yet?

[Joeglas]

Yes, of my cervical and thoracic area from ortho, she called and said due to my symptoms she was referring me to neuro again on nhs and repeatedly asked me if i had family members with a neuro illness

[Johnny5]

I have had pain, stiffness and weakness in my left arm for 9 mths.

The pain is not typical for the initial presentation of MND. Assuming that your initial visit to a neuro did not do an EMG, it is likely that the referral may result in an EMG to rule out any neuropathology. The odds of having MND are pretty slim (2/100,000) and seeing how this presentation really has so many potential causes (like Lupus), it is far too early to think MND is involved.

[Joeglas]

Thanks. I am going to pay private for an EMG.Does anyone have an idea of the cost roughly.
can i also wish everyone all the best on this forum

[Joeglas]

Anyone?

[MNDConnect]

Joeglas Thank you for your forum post. I’m sorry to hear you are experiencing these symptoms. It is understandable you are worried, however, you do need to discuss your concerns with your neurologist as they are the only one who can answer your questions.

Regarding costs to see a neurologist privately, unfortunately, this is not something we are aware of. We do have MND care centres around the country that are centres of excellence in MND. These care centres are based within NHS hospitals, they each have an MND specialist nurse who coordinates the clinic and a neurologist who specialises in MND. You will need a referral from your GP or current neurologist to be seen at one of these centres, but the individual centre would be able to tell you about their process in more depth. Some of the neurologists at these care centres will see patients privately although not all of them will. You would need to contact the care centre coordinator at your preferred care centre to find out. Please see the following link to our website to view the locations and contact details for these care centres https://www.mndassociation.org/suppo.../care-centres/

You are welcome to contact us at MND Connect if you have any further queries. We are available on freephone 0808 802 6262 Monday to Friday from 9am-5pm and 7pm-10:30pm or via email at [email protected]

Kind regards,
Prachi
MND Connect Adviser

[Joeglas]

Hi i am in scotland, there doesnt seem to be any here