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    Head brace

    Hi everyone my husbands neck has got so weak he is finding that the head masters collar is not doing the job now , he has the new mnd snood but can't get on with it , I think he needs something to go round his forehead to stop his head dropping forward . Ali

    Hi Ali,

    Sorry to hear Chris is struggling with his neck.

    Have a look at this leaflet about the various types of head supports:

    The Miami might be suitable as it's high and rigid, or the Oxford Lees?

    I use a head strap around my head with my HeadUp / Snood when travelling in a WAV but IDK if it'd be comfortable to wear all day.

    Is his OT any good or involved?

    Tell him I'm thinking of him!

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      Dear Ali,

      I would just reiterate Ellie's suggestions, the Oxford Lees head support is quite a rigid support which secures around the forehead.

      We would always encourage you to speak to your Husbands Occupational Therapist or Physiotherapist and ask them to assess suitability for a different head support.

      It is very difficult to get the right head support which is not only supportive but comfortable as well. If you find there is no head support available which is right for Chris the Occupational Therapist can approach an organisation called Remap to see if they can make a bespoke piece of equipment for him.

      Remap is an organisation which helps to make equipment for people with disabilities, see link below:
      Remap is a UK charity with skilled volunteers who custom make equipment for disabled people, helping them achieve independence and a better quality of life.

      With kind regards
      Jacqui Anderson
      Senior MND Connect Adviser
      MND Connect
      Contact us on 0808 802 6262 or at [email protected]