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Big thanks to MND Connect

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  • MNDConnect
    replied
    Dear Arcadian,

    Thank you so much for your very kind message. The MND Connect Team really appreciate it.

    It is good to know that we have been a support to you along the way.

    Again, thank you.

    Kind regards
    MND Connect

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  • Arcadian
    started a topic Big thanks to MND Connect

    Big thanks to MND Connect

    Just a thank you to the folk on the MNDA Connect helpline...

    A couple of structured and empathetic conversations on the phone clarifying how to communicate with a Doctors Practice and Hospital interfaces during further symptoms progression, as well as a couple of printed booklets in the post too for family and friends associated with me.

    After a 'good start' (in the circumstances) with my GP and Hospital and my own initially proactive outlook, some gaps and timing issues along the diagnostic journey the last few months (access to GP appointments and which hospital / health region has overview).
    The Helpline People gave some very important pointers and focus towards communication, expectations and additional resource support if required.

    This massively underlines the importance of such specialist organisations and the work they do in supporting folk. (I already have some unrelated complex incurable / quality of life medical needs from over the last 15 years, as well as 'not looking ill' sometimes being a barrier in initial medical scenarios and what you become conditioned to tolerate without external guidance).



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