Hi everyone, I’m having a peg fitted on 24th October at Royal London Whitechapel. I’ve been told I will be in 4/5 days. Does anyone know why I have to stay in that long?.
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My dad was told 72 hours. He had the op by lunchtime Friday and was out by tea time on Saturday. Personally I think he should have stayed longer. He got an infection and we had to have the doctor out Monday to prescribe antibiotics. I hope the procedure goes well and it helps. -
Rosie Different hospitals have different norms Teresa, and whilst 4-5 might seem excessive, if you're in pain, nervous about how to care for the feeding tube, or are being introduced to tube feeding, it’s no harm to have experts on hand should you have any issues or questions.
I was in for 5 days.
Hope the procedure goes smoothly. xx
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I didn’t think of it like that, makes sense.
Thank you Ellie xxComment
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There was a sign up in the hospital when Stephen went in for a refit saying they would be in and out within hours. So a very quick turn around.when i can think of something profound i will update this.Comment
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I had the day case. But I wished I would've stayed 3 days. The clip was put on very tight and I had an infection.
Good luck with the procedure.Diagnosed May 2021 bulbar onset als.Comment
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I was in for four days but it was over a weekend. It gives you time to learn how to use it and recover from the operation. Your abdomen will be painful for about a week but parcetamol deals with that. As Shelley says they put the clip on way too tight and you have to wait a week to adjust it. The Nutricia nurse came out a few times to show me how to turn it.Diagnosed 3rd November 2021 Bulbar OnsetComment
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i was out next day with mine. did anyone have theirs done while awake ?Comment
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I was tempted to try out of curiosityOriginally posted by Patw View Post
but to be honest I have a hard gag reflex so it would not have gone well 
They seemed to do the sedation as standard practice, so I didn't have a chance to question it before I was on the operating table and they were hovering over the cannula in my hand with the sedative meds. I just let them get on with it - so it was goodnight from me!
My PEG was just a day case 6 weeks ago, but I am not using it yet.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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i had no choice Bristol it's called a pig as they do it while you are awake due to bad breathing. it was horrendousComment
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Yes I had no sedation either because of concern over breathing. Felt a bit bad immediately after, but then okay. XDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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I had my long tube removed and replaced with a low profile button endoscopically; the worst part is swallowing the endoscope, once that's down, it was okay and the doctor turned the video screen towards me so I could watch - cool! xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I was in for 2 nights. Went home day PEG.fitted, My report said I was ‘agitated’ so despite sedation I was knocked out.Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.Comment
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you are a super woman that is why Ellie im a big wet fart i hated it because I had key hole surgery it took longer than normal but I couldn't take it whether it was 60secsComment
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My husband is having a R I G next Thursday due to his breathing Patw was it really horrendous.I’m worrying now😩 xComment
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