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    #1

    How to access flu/ covid vaccines

    I was invited to have my flu and covid vaccine ages ago as part of being in the vulnerable group. I keep waiting to feel well enough to book and go for them, but I'm getting worse fairly quickly so it's too difficult to leave the house now.

    I contacted my GP surgery via their triage page and asked how I get them done at home. They didn't respond. My OT was here so she chased and they told her they don't do home vaccinations.

    I can't find out how to access them. Please can you advise me? the NHS pages say to contact my GP... I'm going in circles.
    Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

    Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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    #2
    Hi TinyLady,

    The GP surgery must have a list of housebound patients. Find out from the receptionist how these patients get vaccinated. They may outsource to Community/district nurse.

    Best wishes
    Carer to mother diagnosed May 2021 with bulbar onset MND. No longer speaks, RIG fed, NIV 24 h, left side completely weak/no function, right leg now weak, limited use of right hand.
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      #3
      My GP refused my flu jab so my local chemist did it for me. I wonder if your local chemist could help you.

      Your GP sounds alot like mine.......totally useless xx
      • Likes 1

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        #4
        I have been invited for both jabs. But I am now housebound and can't access them. I messaged the surgery asking how to access them... they ignored my message.

        I got my OT to chase and they told her they don't offer them.

        I can't get out to a pharmacy and I can't phone my GP... so I suppose like with everything else the service is maybe not there for me.

        Can you advise anything MNDConnect?
        Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

        Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

        Comment

          #5
          TinyLady You might get a quicker response by emailing [email protected]
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
          ​
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            #6
            Thanks Ellie I will try that as I'm not having any luck online! NHS site adamant GP does it 😆
            Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

            Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

            Comment

              #7
              We had a similar problem. I tried contacting various people - OT, GP, etc. As a last resort I contacted our local Healthwatch. They were brilliant and eventually discovered there was a dedicated vaccine team for housebound people. Healthwatch is an independent organisation that can help with all sorts of heath and social care issues. If you search for Healthwatch, there is a menu for you to find contact details for your local service.
              • Likes 2

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                #8
                Dear TinyLady,

                I am sorry to hear your GP surgery have been unhelpful regarding your covid and flu vaccination.

                Our information shows that your GP surgery should refer you to the housebound team, these are usually district nurses, who should be able to visit you to provide the vaccines.

                With kind regards
                MND Connect
                MND Connect
                Contact us on 0808 802 6262 or at [email protected]

                Comment

                  #9
                  MNDConnect thank you. Sadly this is not happening. Even the district nurses are saying the GP should do this. But STILL I have no way of accessing the jabs. I'm just passed around.

                  So do I go back to the GP and ask them not to fob me off? I'm so tired of going in circles. I can't wait to die and be rid of all this.
                  Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                  Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

                  Comment

                    #10
                    Polly - thank you, I have looked up health watch. Knew nothing about them. Maybe they can help me because at the moment I'm just being told to go in circles by everyone else! Maybe if they fob me off for long enough the problem goes away...
                    Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                    Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

                    Comment

                      #11
                      Dear Tiny Lady,

                      We are sorry to hear about the difficulties you are having.

                      Please call us on freephone 0808 802 6262 Monday-Friday 9am-5pm and 7pm-10:30pm, or alternatively email on [email protected]

                      We can discuss the issues that you are experiencing.

                      With kind regards,

                      MND Connect Advisor​
                      MND Connect
                      Contact us on 0808 802 6262 or at [email protected]
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                        #12
                        MNDConnect I did email last week but not yet had a response. Phoning is a challenge with my speech now. I am going to contact my GP practice manager next. Probably by the time I sort it we might be ready for next winters version!
                        Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                        Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

                        Comment

                          #13
                          Update for anyone interested....

                          Got a message from GP surgery just now. The nurse is coming out Thursday to do my flu jab and has put me on the hospital list for them to come out and do my Covid booster.

                          Funny how suddenly they can help me 🤔
                          Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                          Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
                          • Likes 4

                          Comment

                            #14
                            TinyLady that's great to read. Hopefully now that you can be on some kind of list, if a future GP appointment is needed they can see you have had previous home visits and might enable future appointments for at home. xx
                            Diagnosed June 2022. Confirmed MND. Limb onset. Symptoms started November 2020.
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                              #15
                              TinyLady Better late than never - let's hope you're now 'on the list'.

                              Such a shame Covid jabs aren't given by your GP surgery too... xx
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                              ​
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