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    Ric feed

    Good evening all , has anyone on here heard of or ever had a Ric feed ? We spoke to the specialist today and she suggested that !

    #2
    I have RIG tube that I take nutrition and all fluid through, it’s very similar to a PEG is that what was mentioned?

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      #3
      Yeah it was I must of heard wrong ... is it good for you ?

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        #4
        I'm very interested what's different to a PEG?

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          #5
          Jackie, if Andy has trouble swallowing, even slightly, or there's a fear he may soon develop issues then a feeding tube is suggested, or breathing capacity is an issue.

          The main benefits of having a feeding tube are that weight is maintained and he'll be able to get enough calories & fluids, which goes a long way to keeping healthy (physically & mentally) and having energy; instances of food and drinks going down the 'wrong way' are eliminated, thus substantially reducing the possibility of episodes of aspiration pneumonia, which can be serious.

          The mantra is to get a feeding tube sooner rather than later so sometimes people wonder, "why the hell did I get this stupid tube so early on?", but there are plenty of others saying, "oh why didn't I go for it earlier?". Even if Andy has a tube, it DOES NOT mean that he stops eating food or drink normally. I use my tube for the bulk of calories and fluids but still eat a small lunch and enjoy my daily coffee Tbh, I thought my Neuro was off the wall when a feeding tube was suggested as I'd no swallow issues, but I was so glad I did get my tube then, as it came in handy quite soon after.

          Of course, it's up to each person as to whether they opt for a feeding tube or not.

          Take care.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Hi Matthew,

            There are a few different ways of fitting a gastrostomy (a feeding tube into the stomach through the skin) namely PEG, RIG, PIG/PRG.

            all procedures have the same outcome, a feeding tube, but how the tube gets there is slightly different. Here’s a very abridged explanation:

            PEG - Percutaneous Endoscopic Gastrostomy - the tube is placed using an endoscope as a guide to finding the right spot for the incision site and is passed through the mouth on guide wires,. Usually done under twilight sedation, so there’s a cut-point in breathing capacity when this procedure is deemed risky.

            RIG - Radiologically Inserted Gastrostomy - the tube is placed using X-ray imaging to find the right spot for the tube, which is placed from the outside. NIV/BiPAP can be used during the RIG procedure, which is why this can be offered to those with compromised breathing.

            PRG/PIG - Percutaneous Radiologically (inserted) Gastrostomy / Percutaneous Imaging Gastrostomy - is a hybrid of the above two procedures. I’ve also seen it called a POG, as if we don’t have enough three-lettered acronyms to learn

            Clear as mud??

            Love Ellie.
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              I had a PEG fitted many years ago but have only used it for meds and extra hydration. I manage with a soft food diet but can’t swallow tablets.

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                #8
                Brilliant thanks x

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