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Bypap machine advice?

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    #46
    Great to hear Denise! Thanks for the update x
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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      #47
      Dont worry too much it gives more energy which was used by friend's father. he feels better now

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        #48
        Hi everyone last night we had bad wind and rain and no electricity. Bipap machine alarm woke me up. No idea what it was at first but when I ran in to check on Stephen there was the red alarm button on. I gather the battery kicks in but have no idea how long it's supposed to last. Thank goodness Stephen doesn't desperately need to use it but it was a concern. Something else to worry about

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          #49
          denise It should tell you in the NIV machine manual how long the battery lasts - usually in the 6-8hr range, depending on settings, humidifier etc. Mine is 8hrs on battery.

          If you get regular power cuts, an external battery as backup is a good idea.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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