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Bypap machine advice?

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  • Jackie
    replied
    ANDY has been on his BiPAP since feb, he was very sick and became hypercapneic before he went on it , he was falling asleep mid sentence, jumping and hallucinating , he has it every night and is much better , all though his diaphragm has been one of the first things to be affected the BiPAP has certainly helped for the time being .. although getting used to it took a little bit of time , he got a very bad pressure sore on his nose and they tried all different masks on him but the Only one he liked was the one that went over his nose and mouth we now put an Alivin padded dressing on his nose where it presses and this has worked , no more sores . Explain to him that this will help him have more energy during the day and help him sleep much better at night and get his blood gases to the correct level. I hope this has helped a bit .

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  • Terry
    replied
    Hi MEJ,

    It probably depends on how close he is, contact wise and how efficient his specialist breathing team.

    Why do you think that he would benefit from one of these?

    Have I got it wrong and you are talking about a feeding tube?

    Love Terry

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  • MEJ
    replied
    How long does it take to organise getting one of these. My husband would relly benefit from one of these I think

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  • Ellie
    replied
    Hi Kayleigh,

    That post seems to be nothing more than an Advert and I reported it earlier.

    In case you and others aren't aware, there is a Report button for every post.

    Unfortunately it doesn't exactly jump out as a report facility as it's the very small triangle located at the very end of the post on the left side (under the user name etc)

    I rememember the size and prominence of the button was discussed with Admin a few years ago but nothing happened - note, it wasn't the current Admin staff.

    Love Ellie.

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  • Katrina36
    replied
    Aawwww thanks Steve,, that so nice off you to say that 😊... Katrina x

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  • Guest's Avatar
    Guest replied
    The only silly question is the one that isn't asked.

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  • Katrina36
    replied
    Hi Lynne,, thanks for that information, sometimes things maybe some be scarier than they are,, I like that it's not like it's forcing air in and sounds quite gentle, and it can be built up gradually., sometimes I feel silly asking some questions, it's just the unknown though I guess.. Thanks for reply ... Katrina x

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  • Guest's Avatar
    Guest replied
    Thanks Terry I'll try that. Yes he's had a bad day today probably because he wouldn't wear it last night. He's hardly eaten today either.

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  • Terry
    replied
    Hi Tabby;

    It is hard to say but probably they put him on the machine to lower his Co2 level and increase his oxygen level.

    If this is the case he will lack energy in the day time and may get headaches in the early morning.

    Many people have trouble wearing them, just see if he will wear it for a half an hour during the day time and build it up SLOWLY to a couple of hours. Bribe him if needbe.

    Good luck, love Terry

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  • Guest's Avatar
    Guest replied
    My dad got his nasal pillow on Friday and is refusing to use it because he hates it. What will this mean for him? :-(

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  • Guest's Avatar
    Guest replied
    Katrina,
    No, that's not a silly question. That is a very sensible question. It probably took me a week or two, maybe more to work up to using it all night.

    Yes, you can breath when it is putting air in. It is very gentle and it learns your breathing rhythm and will allow you to breathe normally. It was not a scary thing. Besides you can turn it off and take off the mask anytime you want. The doctor who orders it sets the pressure and I believe it is usually set low. You can call the doctor at any time and ask to have it set higher or lower.

    Having more oxygen will make your Dad feel better. Good luck. Any more questions, ask away!

    Lynne

    I found I didn't have to set the straps tight, therefore avoiding having it feel tight

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  • Katrina36
    replied
    Hi Lynne,, all that is very interesting to know,, my
    Dad is getting a bipap, can I ask how long it took you to het used to it before you could use it all night?, this might sound a silly question but can you breath in at the same time as its putting air in, how does it know how much to do?,, does that make sense... Katrina x

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  • Guest's Avatar
    Guest replied
    Hello all, There are 3 different types of machines (maybe more) c-pap, bi-pap and ventilator. The c-pap is used for sleep apnea and as far as I know is not used for MND. My husband has one. C-pap - name means continuous air pressure. It does NOT suck air out of your lungs. The bi-pap used for MND gently blows air into the lungs then stops blowing so the patient can exhale normally. It does NOT suck air out of the lungs. I've not had experience with the ventilator, so I won't comment.

    The only problem I had was getting used to the mask but it was not really difficult and as it has been said - working up to it a short time every few hours helped me get used to it until I could use it all night.

    I found it gave me more energy and my bi-pap and I soon became fast friends.

    Hope this helps!!!

    Love, Lynne

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  • Guest's Avatar
    Guest replied
    I think Terry meant 'sore' singular. Little bit of Vaseline will stop any rubbing. He will be getting monitored as well as mask. All good. x

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  • Guest's Avatar
    Guest replied
    A proper fitting mask shouldn't. I am surprised they said that.

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