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    Toilet Question

    So last week was the first time I was required in wiping my partner after the toilet (where we both had a good cry). Another step the wrong direction. Dignity out the window for him and another task confirming the very real progression and need for me to be around more and more. But I'll do whatever it takes to make this all as normal as it possibly can be and allow him to be comfortable.

    Right now we are renting and signed up to various housing associations, but with slow progress with anything coming out of the pandemic, this could be months before we get somewhere. Working with the OT to get all required equipment at this point, regardless of the foreseeable move. The OT didn't seem to know alot about the bidet toilet information and is away to ask and get back to us, but I thought I'd come on here to ask regardless.

    We have researched bidet toilet seats, but most of the simple seat adaptions don't have a drying function (as I'm assuming that electrical connections are then required), which therefore means I'd still be required to be around every time he's got to go. Being a private let right now and the possibility of moving in a few months, we are unable to get a brand new toilet installed.

    Does anyone know of a seat adaption that has washing and drying in the one, where we could get a plumber to set up and remove when we leave?

    Tess x

    #2
    I had a good cry when it first happened to me too.

    Tess, there are wash & dry loo seats which you could take if you moved but they're expensive. A popular brand, BioBidet, costs about £500-600, and cheaper brands do exist - I haven't heard how good/bad they are yet.

    Maybe you could get a grant towards one from MND Scotland?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Thanks Ellie. I'll have a look

      It's difficult as the idea would be to fit a new one into the next accommodation, so looking for a way to bide our time, but that's certainly an option if it could come with you...

      I'll do more research today.

      Tess x

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        #4
        I brought the BioBidet seat with me when I moved house.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          I bought on from Victoria plumbing, got a professional to install, washes and drys it’s brilliant for now, I’m very lucky been offered a bungalow to move to after waiting 11 months, hopefully you both get some good news soon xx

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            #6
            Ideal Ellie!

            Brilliant news Hayls, is this recent?

            X

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              #7
              Hi Tess

              We have just installed "Washloo" toilet bidet seat. It washes and dries. First time used it today. My husband was able to press the remote buttons for both wash and dry and it was great. I checked if he was clean and it did the job perfectly. It was from washloo website, delivered in three days. It cost £520 but with VAT off it was 400 plus. Then £100 for installation.
              my husband is similar to yours re strength in hands. I was having to help him.
              your welcome to message me if necessary.

              Piglet(Irene)
              xx

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                #8
                Thanks for the response piglet. I'll check this out also!

                x

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                  #9
                  There's a few different ones on Amazon. I shall certainly keep this in mind.

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                    #10
                    This is a great and informative thread.
                    Just got the raised toilet frame from OT. Also in private rented accomodation and looking to move.
                    Just chatted to husband about the bidet, I had seen them in learning disability work..
                    He seems keen as I had showed him the extender poles in the mobility book and we didn't think he had the range of motion
                    in the shoulders for it.
                    Lots to research thanks

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                      #11
                      Donna, if your husband were to get a bidet toilet seat now, you could bring it with you if you move.

                      The MNDA might give a grant towards it.

                      Love Ellie.
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      Comment


                        #12
                        Thanks Ellie

                        I was thinking that.

                        Mum with dementia is interested in it too.

                        Off to research I go

                        Love Donna

                        Ps the first lot of Riluzole 50 mg has arrived. Thomas will start tonight (22.08.2020)

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