stephen had some putty stuff for hand exercises but we dont even know where it is now! he used to do exercises every night but now he has given up. to get him to go for a walk is hard work and as for doing the funky chicken - welll i might as well just go try lay an egg! sometimes i could just .... well i know he feels tired but i just want him to try and not just give up.
another thing that i wanted to ask is if i am not careful he will do nothing. i help him with most things but feel sure he is able to do somethings for himself. like i know he can make tea and toast and he can roll himself a fag! there have been times when he wants me to do it and i say well at least try and then i will take over if you cant. this seems to work. its horrible to see him struggle but then again if he doesnt at least try then wont it go the same way as the exercises he will just give up. i feel cruel but then again i do a lot already and sometimes i think by not doing anything surely his brain is going to pack in not just the rest of his moving parts.
another thing is when i have managed to get him out for a walk then he says well i feel better when i get going! what it takes out of me to actually get him to go for a walk i could honestly go for a lie down im worn out.
another thing that i wanted to ask is if i am not careful he will do nothing. i help him with most things but feel sure he is able to do somethings for himself. like i know he can make tea and toast and he can roll himself a fag! there have been times when he wants me to do it and i say well at least try and then i will take over if you cant. this seems to work. its horrible to see him struggle but then again if he doesnt at least try then wont it go the same way as the exercises he will just give up. i feel cruel but then again i do a lot already and sometimes i think by not doing anything surely his brain is going to pack in not just the rest of his moving parts.
another thing is when i have managed to get him out for a walk then he says well i feel better when i get going! what it takes out of me to actually get him to go for a walk i could honestly go for a lie down im worn out.
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