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    pain

    i asked the doctor about this sometime ago but he didnt seem to think it was important but here goes. has anyone found that their pain levels have been elevated? if i make tea, for instance. we always had our tea together and used to drink it at about the same time but now he finds it too hot. not just to his mouth but to his hands. he finds it difficult to pick up a cup because it is too hot. his food is the same. i can eat it but he has to wait. coffee out somewhere and i have finished and he cant drink it so i pour half his coffee into my cold cup so he can drink his. after spending a horrible day at the hospital waiting around for, what we thought was his peg operation only to find it wasn't and then waiting for 2 other procedures it was a stressful day of just being stressed. anway when we did get to eat and then finally arrived home he complained of severe stomach ache. he just went on and on about it being so painful until i thought perhaps it is bad and needs an ambulance. i had told him that perhaps its just wind and i gave him a hot drink, hotwater bottle and ibroprofen. it was so bad he didn#t want to be left on his own. finally he fell asleep and was fine the next morning. my worry is when he has the peg will he be in pain again? ive never known him to be like this, never know him to have stomach ache but it was the reaction to pain. anyone else have this problem?

    #2
    I cannot take drinks as hot as before MND and since having a PEG fitted I haven't had a stomach ache. Happy Days 😁x

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      #3
      Well that's something!

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        #4
        Denise, given that Stephen isn't eating much and could very well be hungry, I also think the pain is likely to be wind, which is common on empty stomachs and is very painful!

        But, if it happens again, no harm getting him checked out by medics.

        And the good thing about having a feeding tube if you've wind is that the trapped air can be released through the tube, rather than wait for it to travel downwards for expulsion 😂

        Love Ellie.


        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          Well that's a big plus because he has no problems with sharing you know what it would be like if I suggested medical help 'I'm ok don't worry, I'll be fine'. He's retold the story of how bad his stomach was and he can't admit it was wind! 😅honestly!

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