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Scared of getting MND as well

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    Scared of getting MND as well

    Hi everyone, this is a question for those who are biologically related to the MND warrior they are caring for. I am hyper aware of my own body now, after sitting in medical/specialist appointments with my Mum over the past 2+ years. I am constantly analysing any change, because I am scared that I will develop MND. Does anyone else feel this way? Has anyone on here had genetic testing?

    Kind regards
    Renee

    #2
    Renee my husband was tested to see if it was possible his version was genetic as we didn't know what his father died from. It came back negative so it won't be passed on to our children. You could ask for your mum to do a blood test.

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      #3
      To be honest Renee I had a gene test done early on and discovered that my mum had passed a bad gene on to me. The good news is my two elder brothers and sister have had no symptoms. Lucky me eh? 😁x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #4
        Had the same feeling!, another distant relative has another form of motor neurone disease effecting children,which is strange as my mother's was sporadic, if no one else had it ,it's unlikely as you usually see a very sad long list of relatives with\had it ,rest of my family get gi tract cancers or accidents ,you would definitely know if you begin to get a continuous amount of fasciculations(nerve twitching) ,but one on and off is probably not.

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          #5
          I have dodgy gene from my dear departed mum, and I the youngest of three brothers and Uncle to hordes of rugrats! So far I am the only recorded case of MND/ASL and fully expect to remain unique. The glass CAN be half full. 👍😁😀xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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