Hello Believe,
Welcome to this forum. My heart goes out to you and your family.
It struck a chord with me when I read in your post that your husband says that 'no-one knows how he feels'. I used to feel like that, but by accepting support available from the wonderful people on this forum and at the MNDA and through counselling, I no longer feel like that.
I would say to anyone affected by MND who feels alone, you are not alone in the way that you feel or what you are going through. We all go through so many emotions - you are not alone if you are suffering from anxiety or if you have feelings of devastation, anger, frustration, extreme sadness and despair. Sometimes we can feel completely overwhelmed by these feelings and we can also feel lonely and isolated.
However, by choosing to accept the help and support that is available, we are hopefully able to make the most of every day and have many happy times with loved ones and friends.
It is never too late to get support from the MNDA or this forum. It is also worth considering counselling, and many hospices offer this.
The important thing is to know that there is help and support available which can improve the quality of life for you and your loved ones.
Please believe.... you are not alone.
Best wishes,
Kayleigh x
Welcome to this forum. My heart goes out to you and your family.
It struck a chord with me when I read in your post that your husband says that 'no-one knows how he feels'. I used to feel like that, but by accepting support available from the wonderful people on this forum and at the MNDA and through counselling, I no longer feel like that.
I would say to anyone affected by MND who feels alone, you are not alone in the way that you feel or what you are going through. We all go through so many emotions - you are not alone if you are suffering from anxiety or if you have feelings of devastation, anger, frustration, extreme sadness and despair. Sometimes we can feel completely overwhelmed by these feelings and we can also feel lonely and isolated.
However, by choosing to accept the help and support that is available, we are hopefully able to make the most of every day and have many happy times with loved ones and friends.
It is never too late to get support from the MNDA or this forum. It is also worth considering counselling, and many hospices offer this.
The important thing is to know that there is help and support available which can improve the quality of life for you and your loved ones.
Please believe.... you are not alone.
Best wishes,
Kayleigh x
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