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    Tinnitus

    Hi everyone

    Stephen was having his breathing checked out at the hospital and Stephen brought up the fact that he suffers from tinnitus. The doctor said we should check with his mnd doctor if there's a connection. I just thought I'd ask if anyone else has this problem. I know it's something a lot of us get anyway but I was just curious.

    Denise xxx

    #2
    Yes Denise, muscles weakened by ALS can cause tinnitus, woohoo not, as can some meds but I don't think Stephen takes many?

    I'm sorry he is going through this (unless his tinnitus is actually your voice in his head 🀭) Seriously though, it can be very debilitating.

    How was his breathing ? xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      No he only takes riluzol Ellie. Won't take anything else - prefers to complain πŸ€” .

      might be my voice in his head says it's an on going squealing/whistle. I think it's just an excuse for not listening to me. πŸ˜‰ he says it worse at night so it sure as hell can't be me! πŸ˜„

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        #4
        Yes he's still breathing πŸ€”

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          #5
          It's just one more thing really, I take nine different drugs every day and so far no tinitus here. πŸ‘πŸ˜πŸ˜˜πŸ˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            Originally posted by denise View Post
            Yes he's still breathing πŸ€”
            πŸ˜‚πŸ˜‚πŸ˜‚

            Originally posted by denise View Post
            Stephen was having his breathing checked out at the hospital
            I meant how did he get on in the hospital, any marked deterioration? xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              Everything is going well. All those years smoking and he's fine. Which doesn't help when I'm trying to tell him to cut back. But he enjoys it so what can I do.

              just had 6 chocolate digestive biscuits. My first treat in ages. 😊

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                #8
                Originally posted by denise View Post
                just had 6 chocolate digestive biscuits.
                And why not!! 😘

                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  Originally posted by denise View Post
                  just had 6 chocolate digestive biscuits. My first treat in ages. 😊
                  Naughty naughty. Little pickers wear bigger knickers

                  Richard

                  Richard

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                    #10
                    No Richard

                    thanks to no chocolate I'm wearing smaller knickers. 😚

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                      #11
                      Poor old Dad already deaf in one ear and has tinnitus...so, not going to tell him this one!

                      Wish I could fit into smaller knickers. Well. I could but there would be so much VPL overhang....
                      Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

                      Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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                        #12
                        Hi positive vibes

                        Once I picked up knickers and tried to get them on. What a fright I got. Overhangs on all sides and that wasn't even past my thighs. Then i realised they belonged to my daughter. What a relief. Give me big knickers any day. Its so nice to be able to breath.

                        have you seen those fat control pants? Who they kidding. Squeeze it in here and it pops out there!

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                          #13
                          The wheelchair lady commented on how slim I am. How times change. 😁xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #14
                            Don't get me started... I have every size going, from 12 (ha!) to 20! (argh!). It's organising the sizes which is a pain in all senses of the word... I have yet to regretfully let the thongs and sexy undies from my youth go... sigh.... maybe it is time to give in to spanx and big pants.

                            Muffin tops are all too familiar here... and not the cake kind!
                            Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

                            Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

                            Comment


                              #15
                              Oh and it was called a wonder bra because when you got it off you wondered where the breasts had gone! πŸ˜‰πŸ˜πŸ˜˜πŸ˜‚xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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