Hello everyone ๐
I am so please I have found this forum. You are all amazing xx
My Dad was diagnosed with MND last week.
A bit of background:
He has been going to the GP for the last few months with a significant right arm and hand tremor and weight loss. We were convinced he had parkinsons at this point. After a few more visits the GP referred him to a neurologist (routinely). We were given a date of Jan 2022. Dad's symptoms significantly worsened (balance, loosing weight) so I went back to the GP to escalate but were told it could still be a long wait. We decided to take him to a private hospital and went within 3 days. The neurologist confirmed the parkinsons diagnosis after a thorough check up but told us he thought he had a muscle wasting disease due to weight loss and fasciculations (particularly on his back). We obviously knew he needed more care so asked to be referred back to the NHS (My Dad is a pensioner with no savings) The following week my Dad went for the EMG test. Then the following week back to the neurologist where he confirmed the diagnosis of MND.
I was so shocked. The neurologist even commented after reading the GP report he believed it was parkinsons alone.
I appreciate any messages and hope to continue his journey on here.
Much love
Catherine xx
I am so please I have found this forum. You are all amazing xx
My Dad was diagnosed with MND last week.
A bit of background:
He has been going to the GP for the last few months with a significant right arm and hand tremor and weight loss. We were convinced he had parkinsons at this point. After a few more visits the GP referred him to a neurologist (routinely). We were given a date of Jan 2022. Dad's symptoms significantly worsened (balance, loosing weight) so I went back to the GP to escalate but were told it could still be a long wait. We decided to take him to a private hospital and went within 3 days. The neurologist confirmed the parkinsons diagnosis after a thorough check up but told us he thought he had a muscle wasting disease due to weight loss and fasciculations (particularly on his back). We obviously knew he needed more care so asked to be referred back to the NHS (My Dad is a pensioner with no savings) The following week my Dad went for the EMG test. Then the following week back to the neurologist where he confirmed the diagnosis of MND.
I was so shocked. The neurologist even commented after reading the GP report he believed it was parkinsons alone.
I appreciate any messages and hope to continue his journey on here.
Much love
Catherine xx
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