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Feeling nauseous every day since having PEG

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    Feeling nauseous every day since having PEG

    Hi everyone I’m new to the forum. I have a question about feeding via PEG. My sister had her tube fitted 2 and a half months ago and was ok for the first week but since then she feels terribly nauseous every time she has any liquid/feeds. She can no longer swallow at all and so this is the only way she can keep hydrated and get sustenance.

    She’s been now given a pump to try but is still feeling really sick all the time. So, there’s often days where she cannot stomach any feeds and only little water.

    She’s tried loads of anti sickness medicine but none of it is working and in fact some have made her feel much worse.

    She’s so fed up and very weak now so is in bed for days.

    Has anyone had this reaction? Has anyone got any advice please. I’m desperate to help ease my sister’s suffering.

    thank you 🙏🏼

    #2
    scramblesuit A warm welcome to the forum.

    Gosh, that's horrible for your poor sister - has no medical professional taken this on?? Is nobody trying to find out what maybe causing your sister to feel constantly nauseous? I cannot imagine how she has put up with such a situation for so long, it's no wonder she has no energy, I'm so sorry.

    The Dietitian should be involved: it could be the type of food, food allergies, how fast it's fed through her feeding tube, the location of the tube itself or the stomach itself. That it happens with plain water too is an important factor too.

    It may be escalated to gastroenterology but, whatever the reason, it needs to be sorted asap.

    When she switched to the pump, was her food changed? What rate is the food going in?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    Comment


      #3
      Hi Ellie

      Thank you for your reply.

      The dietitian has only just got involved about 2 weeks ago. That’s when they introduced the pump. I said to my sister and brother-in-law about the speed of the food going in and the possibility of food intolerances. However, I hasn’t even thought about her still feeling sick with just water. That’s a good point you’ve raised.

      I think they were trying 50mls per hour. I’m not sure if her good was changed she the pump. But I don’t think it was. I’ll find out.

      I think I will suggest getting the
      Gastroenterologist involved, thank you.

      My poor sister is suffering so much I hope we can sort this for her.


      Thank you again for your suggestions.

      xx

      Comment


        #4
        Originally posted by scramblesuit View Post
        I think they were trying 50mls per hour.
        That's nice and slow. If she can't physically tolerate water or the feed at 50ml/h, I think there's else something going on.

        Really hope she gets sorted, I certainly couldn't put up with what your sister goes through every single day... xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          I hope do too, Ellie. It’s been going on too long now. It must be so hard to bear and it’s draining for her.

          Thank you and take care x

          Comment


            #6
            You could try overnight feeds.
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

            Comment


              #7
              Originally posted by matthew55 View Post
              You could try overnight feeds.
              Thank you, Mathew.

              Have you tried overnight feeding yourself?

              Comment


                #8
                Never needed to as I do 1ltr in two and a half hours at 400.
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                Comment


                  #9
                  scramblesuit Just to say; if there's any risk of vomiting, overnight feeding is not recommended due to a high risk of aspiration. xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  Comment


                    #10
                    Surely if asleep you won't feel it going in no?
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                    Comment


                      #11
                      Don't think the problem is pain its more feeling ill through being fed. Stephen looked weird when he was peg feeding he looked bloated. Problem with night feeding if she was sick and no one noticed she could choke.

                      Comment


                        #12
                        Originally posted by matthew55 View Post
                        Surely if asleep you won't feel it going in no?
                        The feed makes the OP's sister feel ill, it's not about whether or not she feels it going in.
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        Comment


                          #13
                          Different strokes init
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                          Comment


                            #14
                            Originally posted by matthew55 View Post
                            Different strokes init
                            What do you mean?
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #15
                              One man's meat is another man's poison. Everyone's different. 😉😘xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                              Comment

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