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My dad very poorly

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    #16
    Omg Jody I’m so so sorry for your loss. it’s heartbreaking πŸ’”. Xx
    Brought a tear to my eye. My mum was taken in this morning with not eating or drinking for the last 6 days. I’m still waiting to hear from the hospital.
    big hugs xx

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      #17
      So sorry Jody πŸ’•πŸ’• May your Dad rest in Peace 🀍🀍
      My Dad died yesterday from this vile disease. It happened very quickly. I am absolutely heartbroken.
      Sending love and hugs to you πŸ€—πŸ€— xx

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        #18
        Jody123 hope can now move on xx

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          #19
          Thank you again for these lovely messages. I can not tell you how much they mean to me. I suppose being here, you all truly understand how this disease affects you and im so grateful for all of your kind words, I really am, so is my mum, I have read them to her, To be honest I felt like leaving the forums as it has been so painful but I’m not, I want to help people going through this as much as possible, I don’t have much practical advice as we seemed to muddle though and only real advice I got through these forums and the truly amazing people here ❀️ However I can offer support, and when I feel better I will do everything I can to support those who need it and campaign for this disease to be better funded, researched and better supported. thank you again so much 😘

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            #20
            Caring takes many forms and living with MND/ASL can be a very lonely thing. So just being here for us helps more than you know. Thank you πŸ‘πŸ™πŸ€—πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #21
              Jody, I’m really sorry for you losing your dad. But at least, as you described, he had a peaceful ending. Not easy for all of you at this time I’m sure. Thank you for your efforts to update us. You are in my thoughts. Love Lynne x
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

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                #22
                Oh Jody. I am so very sorry for the loss of your wonderful Dad.

                Its good that you were with him and I'm sure he knew just how much he is loved. I hope in time, your happier memories will bring you comfort.

                Wishing you strength in these early painful days.
                Love Debbie x

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