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My dad very poorly

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  • Mary C
    replied
    Hi Jody,
    yes wise to find out what caused sudden decline.
    When your dad can get home maybe the hospice team can offer support at home to him and your mom.?
    My hospice team have assured me they can support people with MND in the end stage at home.
    My suggestion would be to make sure support is made available on discharge and any equipment needed too.
    Changes in breathing are scary so you / dad need to know how to respond should this occur again.
    Having had 11 nights in hospital in June I couldn’t wait to get home and knew I had the hospice team ready to follow me up which they did do well.
    Hope your dad is soon able to return home to his garden and family.
    Best wishes
    Mary

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  • LindaB
    replied
    Jody123 hope you're dad improves today & gets home...sorry I can't comment on his overall experience as I don't have the knowledge.
    I hope also your local hospice can offer advice & support.
    Take care
    🙏

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  • matthew55
    replied
    Don't forget the doctors cannot force you to make a decision. They think they can but they can't. Be Strong x

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  • Jody123
    replied
    Thank you for your replies xx I want him to be home desperately, and I did speak to the doctors about that on Friday but they said as they don’t know if it is an infection yet that they couldn’t make a plan. I will speak to them today though, I suppose we are just hoping that new antibiotics will turn the situation around and dad said yesterday that he is happy to wait too. What ever answers we get today though, I think it’s really time tto get him home as soon as possible. Thank you again xx

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  • matthew55
    replied
    I'm sorry to say this but perhaps it is time to let your Dad decide where he wants to be at near the end. Personally I do not wish to die in a Hospital.

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  • richard
    replied
    Dear Jody. Unfortunately I cannot answer any of your questions but just want to say you and your mum are in my thoughts and I send you both a big hug

    Richard

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  • Jody123
    started a topic My dad very poorly

    My dad very poorly

    Hi everyone

    my dad who has declined quite a lot in the last few months, was at home using a niv only at night and still talking although weaker voice, he took a turn for the worse on Friday, his sats kept dropping to about 70, so we put him on the breathing machine whilst phoning the gp, 111 etc who said some one will call us back, whilst we were waiting my mum was moving his machine and it turned off very briefly, his sats went down to 48! I called an ambulance, whilst waiting they did go up to about 90 once the machine started again, and they were only that low for a few seconds, but honestly so frightening. Anyway this was Friday afternoon, he’s in hospital and is very weak using the cpap machine, they can’t really take him off as his sats drop. We are just waiting for blood cultures to come back to see if he has an infection. His blood did show slight abnormalities indicating an infection hence the blood cultures, so he is currently having broad spectrum antibiotics whilst waiting. They have said it could be an infection or just the progress of this disease, however my question is, how would he decline so quickly in a matter of hours if it was disease progression? Anyone else had similar situation with an infection and was well enough to come home again? I’m just so worried and so devastated by this disease. I just want him home and take him out in his garden. I’m terrified he won’t get home. Yesterday he kept saying for me to get him home, and I promised him I will as soon as I can. I feel guilty, what if I can’t keep that promise. I just wanted him to have hope. I’m hoping he’ll bounce back, and go home and have all his grandchildren around him. I can’t sleep knowing he is in that hospital on his own, my heart is so broken, I would appreciate any advice or words of comfort, my poor mum is beside herself! Sorry for such a long post and any spelling mistakes, but I can’t find my glasses anywhere and can hardly see what I’m writing! Thank you xx Jody
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