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My dad very poorly

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  • Deb
    replied
    Oh Jody. I am so very sorry for the loss of your wonderful Dad.

    Its good that you were with him and I'm sure he knew just how much he is loved. I hope in time, your happier memories will bring you comfort.

    Wishing you strength in these early painful days.
    Love Debbie x

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  • Lynne K
    replied
    Jody, I’m really sorry for you losing your dad. But at least, as you described, he had a peaceful ending. Not easy for all of you at this time I’m sure. Thank you for your efforts to update us. You are in my thoughts. Love Lynne x

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  • matthew55
    replied
    Caring takes many forms and living with MND/ASL can be a very lonely thing. So just being here for us helps more than you know. Thank you πŸ‘πŸ™πŸ€—πŸ˜xx

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  • Jody123
    replied
    Thank you again for these lovely messages. I can not tell you how much they mean to me. I suppose being here, you all truly understand how this disease affects you and im so grateful for all of your kind words, I really am, so is my mum, I have read them to her, To be honest I felt like leaving the forums as it has been so painful but I’m not, I want to help people going through this as much as possible, I don’t have much practical advice as we seemed to muddle though and only real advice I got through these forums and the truly amazing people here ❀️ However I can offer support, and when I feel better I will do everything I can to support those who need it and campaign for this disease to be better funded, researched and better supported. thank you again so much 😘

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  • Gordan1111
    replied
    Jody123 hope can now move on xx

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  • Daught21
    replied
    So sorry Jody πŸ’•πŸ’• May your Dad rest in Peace 🀍🀍
    My Dad died yesterday from this vile disease. It happened very quickly. I am absolutely heartbroken.
    Sending love and hugs to you πŸ€—πŸ€— xx

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  • Laney74
    replied
    Omg Jody I’m so so sorry for your loss. it’s heartbreaking πŸ’”. Xx
    Brought a tear to my eye. My mum was taken in this morning with not eating or drinking for the last 6 days. I’m still waiting to hear from the hospital.
    big hugs xx

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  • richard
    replied
    Jody I am so so sorry for you, your mum and family. It was good that you were with your dad at the end. I am sending a very big HUG

    Richard

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  • aussiegirl
    replied
    Condolences to you and your Mum, so glad he went peacefully and you were there with him. Virtual hugs........

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  • Mary C
    replied
    Hi Jody, I am sure you and the family are heartbroken and you have been on an emotional rollercoaster.Hope the loving memories will help you all.Glad your dad had a peaceful end of this life. Sincere condolences to you and your mom.
    God Bless
    Mary

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  • Ellie
    replied
    Oh Jody, I'm so sorry to hear of your lovely dad's death - heartfelt condolences to the whole family. Thank you for taking the time to post at this painful time.

    It's of little comfort now I know, but I'm glad the end was quick for him and for your family too - I mean that in a compassionate way.

    Look after each other in the coming days and weeks.

    Wishing you strength.

    Love Ellie xx

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  • Jody123
    replied
    Thank you for all your replies. My dad died this evening. I am heartbroken. My poor mum has been with him for 56 years, we are all going to be lost without him. He was the most bravest man, he never complained, I’m so proud of him, it was a peaceful end, I held his hand and talked about all my memories and thanked him for the most amazing life he has given me. Thank you to everyone on these forums with your kind replies over the last year. And Ellie, who I messaged privately a few times who gave me advice. You are all wonderful people ❀️

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  • Lynne K
    replied
    I’m really sorry about your dad’s situation. I hope that he improves sufficiently to be sent home to be with his family. Take care, Lynne x

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  • Ellie
    replied
    Originally posted by Jody123 View Post
    We are just waiting for blood cultures to come back to see if he has an infection.
    That's the most pressing thing Jody, you need those results before making any decision, but hospice at home/community palliative nursing is definitely what your dad wants and which should be available to him when needed.

    He might need a chest X-ray to check for pnemonia or infection, or a UTI is often the culprit, so IV antibiotics will help.

    One thing: you said he's on CPAP - I hope that's just a mistake and that he's actually on BiPAP.

    Fingers crossed it's 'just' an infection.

    Big hug to you.

    Love Ellie xx

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  • aussiegirl
    replied
    So sorry you have to watch your Dad like this, it must be scary. I hope he can get home soon and into the garden. Take care of yourself.

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