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    phoning emergency services

    thursday evening. i tried to stay awake but i kept falling asleep so made the decision i was going to bed. stephen watching the football. all he had to do was walk from living room to bathroom to bed. easy! i woke up suddenly at 12. not in bed so took it he'd fallen asleep in front of tv. no, not in bathroom. then i heard him calling from the kitchen. on the floor after bending down trying to turn a light off under the table. one of those sensors that comes on and lights up the kitchen. for the first time ever i couldnt get him up. i tried and tried for an hour. so the need to phone for help. 911, 999, 111, how do i know who to call. so i went for 911. seems to have been the right one but i asked for fire. wrong choice but in portugal would have been right choice. so gave my details. well i did eventually when i could remeber my telephone number, postcode and all the rest. probably should have info next to the phone. made stephen comfortable on the kitchen floor and sat and waited. paramedic turned up about 2 hours later. got himback on his feet, checked him over and back to bed. next day i was exhausted.
    sunday evening. stephen gets ready for bed. kicks off his slippers but when it comes to his underwear he loses his balance and falls to the floor. once more i need to phone for help. this time a recorded message unprecedented calls to emergency services, long wait. so i think make him comfortable and call in the morning. sound asleep my phone rings and SW ambulance services calls 2-3 hours after my call. then a call from a private number asking me to let them know if i need an ambulance. i try to call back but have to go through emergency services to update why i called. about 3am an ambulance arrives and 2 lovely women help stephen to his feet and check him over. they wanted to take him to accident an emergency as he'd been on the floor for so long. all we wanted was to go to bed.
    its unnerving calling for help. made me feel hopeless but it has to be done. i hurt my back, shoulder and thighs trying to get him up. waiting for an ambulance most of the night certainly doesnt help because i felt terrible the next day. must keep information close to the phone so i can read off what they need to know. there should be another service for not life or death just a general help line.

    #2
    denise you must both be exhausted! Maybe the time has come whereby you don't try and help Stephen up on your own.
    There use to be a community alarm service that would send the reablement team out where someone had fallen....with specialist kit to help them up. All areas are different Careline....Linkline some alarm service to prevent hospital admissions. Worth checking out...can't have you injured then where would Stephen be๐Ÿ’‹
    Take care xx
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

    Comment


      #3
      Oh you poor lady, Denise, Stephen too, what a traumatic few days... I'm hesitant to say that Stephen will continue to fall unless/until he uses mobility aids, so stick your details somewhere obvious. Any chance he'll listen to the OT?

      999 is the right number, I'd say 111 would tell you to ring 999. (911 does work and I think 112, but they're advertised to avoid confusion)

      Linda is right - check out alert alarms, first see if the council provide the service.

      If your very lucky, an OT will provide a Raizer but probably more chance winning the lottery, so you could employ people to keep S upright.

      Look after your back. xx
      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      โ€‹

      Comment


        #4
        I pay 28 a month for my alarm service
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

        Comment


          #5
          Originally posted by matthew55 View Post
          I pay 28 a month for my alarm service
          Just under a quid a day for peace of mind, good value xx
          โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          โ€‹

          Comment


            #6
            Denise what stress and lost sleep. I certainly hope that a walking aid is acceptable and that you can get a Raiser. We have one and itโ€™s brilliant. Love Lynne x
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

            Comment


              #7
              Oh Denise.. I'm so sorry! you must both be exhausted! Falls are traumatic both mentally and physically .

              My husband used to walk behind me using a rollator ( me not him with the rollator!) to catch me if I fell but looking back it was a bit bonkers. As I am slight he could pick me up but I ended up having a serious accident anyway. Its a fine line between wanting to stay independent and needing to be safe.

              Hopefully your OT might provide a raiser thing but mine said i was falling so often i needed to stop walking.

              Love and hugs to you both and take care of yourself Denise.
              Debbiex

              Comment


                #8
                So sorry Denise.

                You definitely need help now and CHC. I have lived in my bed for well over 9 years now. I hate to think about what next may happen.

                Life can be good when you sort out Stephen's care.

                Love and hugs xxxx
                Copyright Graham

                Comment


                  #9
                  Hi everyone thanks for your kind thoughts and suggestions. When the ambulance service asked what the problem was I said he's on the floor, has mnd and a serious case of stupidity.

                  hopefully my son can talk him into thinking about both our needs.

                  love to all of you.
                  ๐Ÿ˜˜

                  Comment


                    #10
                    Hi denise

                    Sorry you are both going through this

                    Hubs and I had same problem in December 2020, had just moved house

                    I found I could no longer get him up from the floor. What the heck to do at 3am?

                    Had to call 999 Ambulance

                    They were great

                    What followed was hubs was getting frozen on the stairs, couldn't move up or down. Eventually I had to sit him on the stairs
                    Call ambulance
                    Up shot got the same 2 blokes all 3 times

                    Had to stop using the stairs
                    Spent March to now, sleeping in living room
                    Just move to a smaller adapted flat.

                    He can only transfer now, bed to wheelchair, to commode or riser.
                    Stand and shuffle a little dance with me.
                    I think we stopped the walking a bit soon but it was scary to watch because he can't use his arms at all, to catch himself.
                    Due to COVID no rehab or physio (they didn't seem very keen anyway)
                    I was getting anxious at the thought of him mobilsing to toilet or bed

                    I asked about a call service to get him off the floor but our area doesn't have one.
                    but the Ambulance people were great, lovely and reassuring. At said it was not a bother and that is what they are there for.

                    Best wishes to you both

                    Donna

                    Comment


                      #11
                      Fantastic about your local emergency service Donna and good luck for a house move very soon. Love Lynne x
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

                      Comment


                        #12
                        DeeH Donna, do you think a standing hoist would be useful, not only for Thomas, but also (mainly?) for you? xx
                        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        โ€‹

                        Comment


                          #13
                          Thanks for that Donna. It's certainly a learning curve.

                          my husband walked from the living room out onto the balcony then back into the kitchen. Then announced he feels a bit giddy today. I feel like strapping him to his chair!!

                          ambulance service wonderful. Just a long wait. ๐Ÿ˜š

                          Comment


                            #14
                            How about getting him a wheelchair?
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

                            Comment


                              #15
                              Originally posted by denise View Post
                              ... I feel like strapping him to his chair!!...
                              ... and plugging it in? ๐Ÿ˜๐Ÿ˜๐Ÿ˜˜

                              โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              โ€‹

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