All confused

[Laney74]

So my mum was diagnosed in March this year and the disease has processed beyond quickly (in my eyes). I live in Hertfordshire and mum & dad In Norfolk. Trying to get them in a care home near us as mum now needs 24hr care and dad has altzimers and dementia. That’s hard In itself!!!!!!
so this morning mum has been taken into hospital as hasn’t eaten in six days and BARLEY drank too. I came up from Herts yesterday and the decline In two weeks was SHOCKING. Is this normal???? Mums struggling to talk and swallow and has been bed bound for a while now. From her belly button down it’s all not working and now her arms are so much weaker. She looked so poorly this morning I’m so scared but just don’t know what to expect???? Xx

[Daught21]

My Dad was diagnosed in June this year and sadly died yesterday. My Dad's MND progressed very quickly. He had dramatic weight loss of the period of a short time. My poor Dad phoned me on Friday morning and couldn't breath. The MND had weakening his breathing muscles so quickly. He was only seen by the MND nurse two days before.
Sending love and hugs to you 💕💕 Message me any time xx

[Ellie]

A warm welcome to the forum Laney, sorry to hear about your mum, and your dad.

so this morning mum has been taken into hospital as hasn’t eaten in six days and BARLEY drank too.

May I ask who organised for your mum to go into hospital? And do you know if she is now on a drip and/or has an NG tube?

Love Ellie.

[Gordan1111]

Welcome Laney74. It's difficult to know progression. It's different for everyone, but the more you can detail about your mum's condition the better x

[Piglet]

Hi daught21.so sorry to hear about your Dad. I hope you are coping as well as you can. Sending a big hug.x

[Piglet]

Laney74 thinking of you and your Mum and Dad.xx

[LindaB]

Laney74 hoping your mum is getting good care in hospital. Such a lot happening at once must feel overwhelming. Take care xx

[Banned]

It is very difficult to read stories like this and not wonder what the heck is happening in this country????

Social services Laney but surely your parents are in the system???

[Laney74]

Hi all. Thank you for the replies!! The respiratory dr called me yesterday and told me mum has such high levels of carbon dioxide in her bloods she wasn’t likely to come out of hospital. Haven’t slept all night kept waiting for the phone to ring!!!!!!!
I had to call 999 yesterday morning after mum was struggling to breathe and hadn’t eaten or drunk for a few days. They was going to do NIV last night.
waiting to hear more news this Am. xxx

[Laney74]

My Dad was diagnosed in June this year and sadly died yesterday. My Dad's MND progressed very quickly. He had dramatic weight loss of the period of a short time. My poor Dad phoned me on Friday morning and couldn't breath. The MND had weakening his breathing muscles so quickly. He was only seen by the MND nurse two days before.
Sending love and hugs to you 💕💕 Message me any time xx

I’m so so sorry to hear about you dad 😢😢.
sending hugs back to you 💔💔.
mum was the same she was seen by OT respiratory nurse and two lots of paramedics at the weekend!!! Xx

[Mary C]

Hi Laney,
I hope your mom is comfortable now in hospital and you are kept informed.It’s so awful and stressful waiting for as you said the phone to ring.Are you able to go and be with your mom in hospital as she is so ill?
Thinking of you
Mary

[Lynne K]

My Dad was diagnosed in June this year and sadly died yesterday. My Dad's MND progressed very quickly. He had dramatic weight loss of the period of a short time. My poor Dad phoned me on Friday morning and couldn't breath. The MND had weakening his breathing muscles so quickly. He was only seen by the MND nurse two days before.
Sending love and hugs to you 💕💕 Message me any time xx

I’m very sorry for the loss of your dad so quickly to this cruel disease. RIP your dad and hugs and love for you. Lynne x

[Lynne K]

Hi Laney. Not easy at all for you with two parents in such a bad situation. I hope that your mums NIV worked to get her carbon dioxide levels down. Good luck for a local care home close to you can accommodate both parents. Love Lynne x

[DeeH]

My Dad was diagnosed in June this year and sadly died yesterday. My Dad's MND progressed very quickly. He had dramatic weight loss of the period of a short time. My poor Dad phoned me on Friday morning and couldn't breath. The MND had weakening his breathing muscles so quickly. He was only seen by the MND nurse two days before.
Sending love and hugs to you 💕💕 Message me any time xx

Daught21

So sorry to hear of your loss

Hugs and Strength
at this callenging time

Kindest wishes

Donna

[matthew55]

Hope everything is okay. Thinking of you 🤗🙏xx