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Carers for MND in Kent

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    Carers for MND in Kent

    Hi everyone,

    I was wondering if there were any other carers here on this site based in Kent who would like to connect and maybe even meet up for a coffee and walk and chat? Be great to connect with others who are in the position of caring for someone with this dreadful disease.

    #2
    Miles and miles away in Cumbria.

    Hope you connect to someone closer

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      #3
      Mole41 Have you checked out if there are any get togethers organised by your local MNDA branch? xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Hi
        I live in Maidstone.
        my wife was diagnosed in august this year, still trying to get our heads around it.
        where in Kent are you?

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          #5
          Shaun wheadon A warm welcome to the forum Shaun.

          Sorry to hear of your wife's diagnosis and, yes, it's a big thing to get your heads around.

          We're here for you both if you want advice, to laugh or cry, or to let off steam.

          Love Ellie xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Welcome aboard our merry ship travelling to nowhere Shaun. Sad you have joined us but happy to meet you. 😁🤗👍😀xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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              #7
              Welcoming here Saun. Sorry about your wife’s diagnosis. This is the right place for support and advice. It is hard in the beginning but taking each day as it come where you both can helps enormously. I hope that your wife had met all of the team that can help her (physio, speech therapist, OT, wheelchair services and dietitian). Look after yourself, Lynne x
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

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                #8
                Shaun wheadon just down the road really, we are in Ashford. My partner Stuart was diagnosed last April. We still wake up shocked every day that this has happened to us. Be great to chat sometime with you, and perhaps give each other some support in some way

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                  #9
                  Mole41 , hi, yes we too, diagnosed may this year, still waking everyday feeling the shock of it all. Battered by all the hospital visits, the various services turning up for introductions and home visits, the way life has taken a whole 90` turn away from all your future plans. The tears and the fears, totally traumatic and exhausting and anger making too. Stay angry and stay strong, cry when you need to and laugh at the most stupid of things, it will help you both through your journey.

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                    #10
                    Chris Mottram-Wooster A warm welcome to the forum Chris.

                    Love Ellie.
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    Comment


                      #11
                      Welcome Chris. The illness doesn't get better but your mood can. Nothing in this life is easy. 🤗😁🤘🍺xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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