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Is inflammed bowel part of mnd?

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    Is inflammed bowel part of mnd?

    Hi
    mum was diagnosed last week. She had a full CT scan to rule out anything else before having a diagnosis confirmed. They did say that she has an inflammed bowel and think possibly crohns disease??!! They have asked to do a colonoscopy to which me and my sister have said no to. Mum was crying and distressed having previous tests (where they shoved a tube up her nose) to do with ENT. Is inflammed bowel part of mnd? Surely if she has crohns we'd have known before now ? Are we right to decline to colonoscopy? We feel we can't distress her any more, as she's been poked prodded etc like a guinea pig this week with all the tests. Her brain isn't right and it's like she has dementia but that's been ruled out . She'd gain nothing from it, as mum has deteriorated so much in a few months. And she fell again in hospital last night. 😨😨 any thoughts?
    Last edited by Stargazer; 5 October 2021, 20:55. Reason: Typos

    #2
    So sorry stargazer. Crohn’s disease is something that one of my family has. Not nice at all and very painful. Lead to a colostomy. As far as I’m aware nothing to do with mnd but having mnd doesn’t exclude anyone from having other conditions like crohn’s. I would have let your mum have the relevant tests to find out if that’s it so she can have the appropriate medication and other help. I’m sorry for all of the prodding and poking that your mum has had to endure but how else can the professionals find out what thing or things are going wrong in yourp mum. I hope that they get to the bottom of it soon and then your mum gets some relief. I also hope that you and your sister find some comfort soon. Love and 🤗 Lynne xx
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      #3
      The odd thing is tho, it showed on a ct scan. Mum doesn't have symptoms or stomach pain..... just the noticeable weight loss. 😐

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        #4
        Originally posted by Stargazer View Post
        Mum doesn't have symptoms or stomach pain..... just the noticeable weight loss.
        Lydia, given that your mum's speech is affected, it is possible that her swallow is too and she has reduced her calorie intake because chewing and swallowing is harder now and/or makes her cough. Notwithstanding the abnormal bowel CT scan and bearing in mind some loss of manual dexterity, do you or your sister know if your mum's eating habits have changed to account for the weight loss? xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          Hi Ellie
          mums eating is a bit less, (she's still in hospital) but she does eat what is cooked for her. She's wheat/dairy/soy intolerant. Plus other things . Her eating is alot slower. (Aporox an hour to eat her tea) and she used her finger to eat a free from mince pie my sister had taken her. Her muscles on her have shrunk noticeably

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