If you help care for a loved one living with MND we’d love to hear from you.
The Association has launched a new project to look closely at the needs of unpaid carers.
You may prefer to see yourself as a partner, relative or friend if you support someone with motor neurone disease (MND) or Kennedy's Disease rather than a ‘carer’. However, you may come across particular challenges to do with caring and we know the pandemic has made things more difficult.
We want to find out what issues you face as an unpaid carer so we can better shape our support to help you. That might include changing the help we offer or campaigning on the issues that matter to you most.
We’re asking people who currently help look after a loved one living with MND and provide unpaid care to share their thoughts, views and experiences with us by taking our online survey. We estimate the survey will take roughly 30 minutes to complete. However, you can save and return to your answers if you don’t have time to complete it in one go, and you can skip any sections of the survey that don’t feel relevant to you. The survey will close on 13th December.
We know your time is precious so if you can’t complete the survey there are different ways to get involved, including contributing to a virtual focus group or having a one-to-one interview at a time convenient to you. We will be updating these opportunities on our webpage.
If you have any questions in the meantime or want to find out more about getting involved and sharing your experiences, please email [email protected]
Thank you in advance for any thoughts you are able to share
The Association has launched a new project to look closely at the needs of unpaid carers.
You may prefer to see yourself as a partner, relative or friend if you support someone with motor neurone disease (MND) or Kennedy's Disease rather than a ‘carer’. However, you may come across particular challenges to do with caring and we know the pandemic has made things more difficult.
We want to find out what issues you face as an unpaid carer so we can better shape our support to help you. That might include changing the help we offer or campaigning on the issues that matter to you most.
We’re asking people who currently help look after a loved one living with MND and provide unpaid care to share their thoughts, views and experiences with us by taking our online survey. We estimate the survey will take roughly 30 minutes to complete. However, you can save and return to your answers if you don’t have time to complete it in one go, and you can skip any sections of the survey that don’t feel relevant to you. The survey will close on 13th December.
We know your time is precious so if you can’t complete the survey there are different ways to get involved, including contributing to a virtual focus group or having a one-to-one interview at a time convenient to you. We will be updating these opportunities on our webpage.
If you have any questions in the meantime or want to find out more about getting involved and sharing your experiences, please email [email protected]
Thank you in advance for any thoughts you are able to share
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