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    Carer Support Groups

    Hi everyone. My local branch is looking to set up a support group specifically for anyone caring for someone living with MND so I’m wondering if anyone runs or participates in such a group and would be willing to share either publicly or privately what sort of things take place. What works / doesn’t work for you.

    Thank you for reading

    #2
    Sorry unable to share any information as I don’t participate in any carer group. Good idea though

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      #3
      Originally posted by Piglet View Post
      Sorry unable to share any information as I don’t participate in any carer group. Good idea though
      Thank you for responding

      Comment


        #4
        What usually takes place is we complain about lack of help and support. Sometimes we share tips . Mostly we just vent. Sometimes we just talk about anything but what we do. It's a difficult one because it can be depressing if someone is stressed you can come away feeling worse than you started. Basically I gave up. It didn't work for me.
        when i can think of something profound i will update this.

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          #5
          I've only attended two so hardly a good one to pass on anything.

          My experience, on zoom only, was they already have built up rapports with each other and I felt like an outsider, I was sat on my office chair for a couple of hours in front of my lappy and my backside hurt so I wont be visiting again, having said that I'm not one for face to face either so I'm a lost cause,

          I'll wing it

          Husband Albert diagnosed PMA Feb 21

          Comment


            #6
            Originally posted by denise View Post
            What usually takes place is we complain about lack of help and support. Sometimes we share tips . Mostly we just vent. Sometimes we just talk about anything but what we do. It's a difficult one because it can be depressing if someone is stressed you can come away feeling worse than you started. Basically I gave up. It didn't work for me.
            Thank you for sharing your thoughts

            Comment


              #7
              Originally posted by Suefromwakey View Post
              I've only attended two so hardly a good one to pass on anything.

              My experience, on zoom only, was they already have built up rapports with each other and I felt like an outsider, I was sat on my office chair for a couple of hours in front of my lappy and my backside hurt so I wont be visiting again, having said that I'm not one for face to face either so I'm a lost cause,

              I'll wing it
              Thanks for sharing Sue.

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