Carer Support Groups

[Bowler]

Hi everyone. My local branch is looking to set up a support group specifically for anyone caring for someone living with MND so I’m wondering if anyone runs or participates in such a group and would be willing to share either publicly or privately what sort of things take place. What works / doesn’t work for you.

Thank you for reading

[Piglet]

Sorry unable to share any information as I don’t participate in any carer group. Good idea though

[Bowler]

Sorry unable to share any information as I don’t participate in any carer group. Good idea though

Thank you for responding

[denise]

What usually takes place is we complain about lack of help and support. Sometimes we share tips . Mostly we just vent. Sometimes we just talk about anything but what we do. It's a difficult one because it can be depressing if someone is stressed you can come away feeling worse than you started. Basically I gave up. It didn't work for me.

[Suefromwakey]

I've only attended two so hardly a good one to pass on anything.

My experience, on zoom only, was they already have built up rapports with each other and I felt like an outsider, I was sat on my office chair for a couple of hours in front of my lappy and my backside hurt so I wont be visiting again, having said that I'm not one for face to face either so I'm a lost cause,

I'll wing it

[Bowler]

What usually takes place is we complain about lack of help and support. Sometimes we share tips . Mostly we just vent. Sometimes we just talk about anything but what we do. It's a difficult one because it can be depressing if someone is stressed you can come away feeling worse than you started. Basically I gave up. It didn't work for me.

Thank you for sharing your thoughts

[Bowler]

I've only attended two so hardly a good one to pass on anything.

My experience, on zoom only, was they already have built up rapports with each other and I felt like an outsider, I was sat on my office chair for a couple of hours in front of my lappy and my backside hurt so I wont be visiting again, having said that I'm not one for face to face either so I'm a lost cause,

I'll wing it

Thanks for sharing Sue.