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Jevity & Giving Sets available

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    Jevity & Giving Sets available

    I did recently spend some time caring for someone with MND - but sadly it progressed very quickly and she died last month.

    Right now I've got a few unopened boxes of Jevity 1.5 kcal and a box of giving sets to fit an Abbott FreeGo Pump.

    If anyone in London or the surrounding area might want these - please let me know. I can drop them off. Happy to give them away rather than have them wasted.

    I thought - with the pandemic - people might like to have extra stocks in case of disruption to deliveries.


    #2
    fjay
    Forum Member
    fjay Thanks for offering the products - have they long expiry dates? xx
    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    โ€‹

    Comment


      #3
      Originally posted by Ellie View Post
      fjay
      Forum Member
      fjay Thanks for offering the products - have they long expiry dates? xx
      They should do - they were only delivered last month. I don't have them here right now but can check in a couple of days.

      Forgot to add - got quite a few ENFIT 5ml syringes too - good for medication.

      Comment


        #4
        Originally posted by fjay View Post
        They should do - they were only delivered last month.
        ๐Ÿ‘๐Ÿ‘
        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        โ€‹

        Comment


          #5
          fjay
          Forum Member
          fjay if no one on here maybe your local hospice? Best wishes & sorry for your loss๐Ÿ™
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

          Comment


            #6
            Originally posted by LindaB View Post
            if no one on here maybe your local hospice?
            If only... They usually refuse citing Health & Safety ๐Ÿ™„
            โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            โ€‹

            Comment


              #7
              Originally posted by Ellie View Post
              If only... They usually refuse citing Health & Safety ๐Ÿ™„
              My local hospice must be less fussy....donated ensure drinks to me ๐Ÿ˜‡๐Ÿค
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

              Comment


                #8
                Originally posted by LindaB View Post

                My local hospice must be less fussy....donated ensure drinks to me
                Oh, they've no issue giving, it's the receiving they don't much do; no control over where and how it has been stored, where it came from etc.
                โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                โ€‹

                Comment

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