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    #16
    I'm so sorry Betty to hear about the loss of your darling husband x

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      #17
      Lynda. My heart goes out to you. I wish you love and strength in the days ahead x

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        #18
        Lynda it must be agonising waiting. I also think the same re fast decline. I have bulbar onset diagnosed may 21 but I know it started some 18 months prior. Please take solace that your love an care would've made Neil feel loved. I hope you find support for you over the coming months x
        Diagnosed May 2021 bulbar onset als.

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          #19
          Betty May my heart felt condolences to you. Hope you have loved ones for support x
          Diagnosed May 2021 bulbar onset als.

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            #20
            Hello everyone - thank you for all your kind messages of sympathy which are so appreciated.

            Lynda I'd like to get in touch sometime. These last few days my thoughts and prayers have been, and continue to be, with you and Neil and your family.

            xx
            Husband died 14 months after MND diagnosis.

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              #21
              Betty May so sorry for your loss...sending peace and light to you. Take good care of yourself 🙏
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                #22
                Lynda such a difficult time and my thoughts are with you🙏
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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