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RIP Fru's Ed

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    RIP Fru's Ed

    I am sorry to have to tell you that my gorgeous, lovely and brave Ed passed away peacefully at home this afternoon. He became very unwell on Friday night and over the weekend we had many district nurses coming in to help to make him comfortable. Thank you, everyone here who has helped us ride this horrendous disease with unwavering support always.
    Fru x

    Sorry Frh;

    He looked so well Thursday.

    Don't know what to say.

    Hugs Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.


      Very sorry about your loss Fru, take care. Hugs, Lynne
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.


        Dear Fru,

        I am so sorry to hear the sad news about your beloved husband Ed.

        Ed was such a brave gentleman and you always looked after him lovingly and attentively. The strong bond of love you both shared must have been a great comfort to him.

        I hope that the pain of your loss will be eased by many happy memories of the years you shared together.

        I hope you find comfort in knowing that you always ensured Ed was made comfortable.

        You are a very kind and caring lady and I hope you have family or friends with you to support you at this sad time.

        Please accept my heartfelt condolences.

        Thinking of you.

        Lots of love,
        Kayleigh xx
        Last edited by Kayleigh; 7 May 2019, 23:32.


          So sorry for your loss Fru.

          Wishing you and your family much love, support, and comfort. I hope your happy memories will always sustain you.

          Hugs CC xox


            So sorry to hear of the sad loss of Ed Fru xxxx


              Oh no!

              I'm so so sorry to hear your tragic news Fru.

              My condolences

              Diagnosed April 2017


                Dear Fru,

                I am so very sorry for the loss of your beloved husband, Ed.

                I hope you have love and support around you and that in time, you find comfort from your happy memories.

                Thinking of you,
                Love Debbie x


                  Hello Fru,

                  Please accept my condolences for the loss of your beloved husband Ed. I hope in time you can look back at happier times in your lives.

                  Best wishes,
                  I’m going to do this even if it kills me!


                    So sorry to see this. Thinking of you and your family.


                      Heartfelt condolences to you and the family Fru.

                      Ed was lucky to have such a wonderful woman as you in his life.

                      Big, tight hugs to you.

                      RIP Ed.

                      Love Ellie.
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user


                        Thank you my forum family for your kind words and thoughts for Ed and I. Since February we have been having some difficult days and this time, Ed just wasn't strong enough to fight it. He was okayish last week then on Friday night he suddenly couldn't breathe.
                        I loved Ed and tried my hardest to put everything in place so that I could be selfish and keep him for as long as possible.
                        Yes, I really did care and in the last few weeks got all the support I needed from friends and family who put aside their differences.
                        We didn't sit around and got out together a fair amount; theatre, concerts and sensory swimming.
                        Ed went to sleep and quietly slipped away from us. I will keep in touch. Much love Fru XX


                          Dear Fru,

                          t's lovely to hear from you again. Its very kind and thoughtful of you to keep in touch, during what must be a difficult time for you.

                          It's wonderful that you made the time you had with Ed as happy and as special as it could possibly be. It's lovely to hear that you were able to get out and about together, so that you could share some precious time doing activities that you both loved and enjoyed.

                          Your devotion and love for Ed must have given him a lot of strength to carry on, for as long as he possibly could.

                          I don't think you were being selfish for wanting Ed to be with you for as long as possible. I expect he would have liked to stay longer, if he could. After being brave for so long, he'd reached his time to drift away peacefully with the angels, to a place where he is resting in peace.

                          I'm so glad you have got the love and support of family and friends.

                          Lots of love to you and your family,
                          Kayleigh xx
                          Last edited by Kayleigh; 9 May 2019, 11:08.


                            So pleased you enjoyed your final weeks with Ed . You aren't selfish, of course you wanted him to stay and I'ms sure that he did too, he wouldn't have wanted to leave you. Treasure youre memories xxx


                              Hi Fru

                              Sorry to hear of you loss. Treasure all those memories you have made together.

                              Sue and Steve x