Announcement

Collapse
No announcement yet.

Paradoxical breathing - are we near the end

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #16
    As always, thank you Ellie for your knowledge and compassion.

    Comment


      #17
      DeniseB-C thinking of you at this time. Best wishes that your Dad is comfortable and pain free.xx

      Comment


        #18
        I'm sure it will have brought your dad a lot of comfort to have had his family with him at this difficult time. I hope they can make him comfortable.

        Comment


          #19
          DeniseB-C thinking of you at this difficult time. Thank you for sharing x
          Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

          Comment


            #20
            DeniseB-C Thinking of you all too xx
            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

            Comment


              #21
              Thank you everyone for your kind thoughts and words.

              Comment


                #22
                Dad was moved to the local hospice on Tuesday as we were advised that the DN’s didn’t have the capacity to come every day to deal with a syringe driver at home.

                So hospice it had to be. He is now receiving meds via a syringe driver and was mostly unresponsive when I went there last night. It is very upsetting. I pray his body will allow him to slip away soon

                take care everyone.

                Comment


                  #23
                  DeniseB-C Sorry to hear the DNs couldn't help. hope he is getting really good care in the hospice. Sending love to you all x
                  Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                  Comment


                    #24
                    DeniseB-C Thinking of you Denise. xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    Comment


                      #25
                      DeniseB-C

                      Thinking of you and your Dad. x
                      Diagnosed 3rd November 2021 Bulbar Onset

                      Comment


                        #26
                        Sending lots of love xxxx Hope he is peaceful. xxx
                        Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicates with eye gaze.

                        Respiratory function - CO² Up

                        No speech but sense of humour still fully intact.

                        Comment

                        Working...
                        X