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    Dad

    My Dad died this morning, 6 months after diagnosis with this shitty disease. He never came to terms with the MND and the rapid decline, a year ago he was fine, still riding his bike and today he is gone.

    The MND wouldn't even allow him to rest after he had died, the twitching just carried on. I'm bitter that him and Mum never got the proper support they were promised, his so called specialist nurse saw him once after his diagnosis, they were left to get on with it.

    Am thankful in the end he died at home, peacefully in his sleep, with us all and that he no longer has to struggle. He was the best Dad, I'm going to miss him so much.

    #2
    My condolences on the loss of you dad.

    Comment


      #3
      So sad to hear of your loss. Our condolences to you and your family.
      We all worry about how the end will come, but going peacefully surrounded by our loved ones is about the best we can hope for.
      He is indeed at peace now.
      Hi, I'm Eddie.
      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
      Still walking and talking, and wondering what the future will bring.

      Comment


        #4
        So sorry to hear this and sad that you didn’t get the support you were promised. A peaceful end is a good outcome in the face of this relentless disease. Sending condolences to you, your mum and family
        Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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          #5
          Drumond30 my thought are with you and your family. Its hard enough with this god awful disease that one doesn't get the care and support one needs. It does almost feel like a lottery. My symptoms came on suddenly but no one believes me. You were all there for your dad and he was blessed to have you as a son x continue to be strong for your mum x

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            #6
            Thanks for sharing this news with us, so very sorry for your loss, 6 months was so quick. So glad for him and you all that he died in the best way possible, with you all and in his sleep. Sending love to you and all your family. Heather x
            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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              #7
              Drumond30 There are no words to make this easier for you but I hope that the support you need now is forthcoming and that you and your family can find the strength to accept any support you need to cope with your loss. My thoughts are with you all.

              Comment


                #8
                Drumond30 sorry re the loss of your dad. You did such a great job taking care of him now please take care of you.

                X
                Diagnosed May 2021 bulbar onset als.

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                  #9
                  So sorry for the loss of your Dad. This is such a cruel disease but I am glad it was peaceful. My thoughts are with your family.
                  Diagnosed 3rd November 2021 Bulbar Onset

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                    #10
                    I am so sorry for your loss. Relieved to hear it was a peaceful passing and you could be with him. Sending lots of love.

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                      #11
                      I am so sorry for your loss. MND is such a horrendous disease and to not have had the support necessary is just awful. I am pleased your Dad had a peaceful passing, it is all any of us can hope for. Sending love and strength to you, your Mum and all your family. x
                      Bulbar onset diagnosed Nov 21. No speech but limbs ok so far.

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                        #12
                        Sending love and hugs. I'm glad it was home with family.
                        denise xxx
                        when i can think of something profound i will update this.

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                          #13
                          Sending love & lightπŸ™πŸ»πŸ•―
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                            #14
                            Dear Emma,

                            I am so sorry to hear this sad news.

                            There are never enough words to provide comfort at a time like this but my thoughts will be with you and your brother during this time of sadness.

                            Take care and thank you for sharing your experiences with us, I hope we have been able to help in some way and make this awful journey that little more bearable.

                            James ❀️
                            Foxes Never Quit πŸ’™

                            Comment


                              #15
                              My thoughts are with you on the loss of your dad β™₯️ X
                              Janette x

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