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Recommended carer in West London

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    Recommended carer in West London

    Our beloved Ivo passed away on April 29. The forum has been a place of invaluable information for me while caring for him. Thank you to everyone for the helpful tips, advice and solidarity .

    For the last year we worked with a private carer, Rigo, in the mornings. In addition to help with shaving, showering and short walks when Ivo's chair became too heavy for me to handle, Rigo was a real assistant to Ivo, ready to turn his hand to anything, from getting his computer or iPad set up, changing a lightbulb, to popping to the shops, watering the plants and , crucially, maintaining NIV machines each day. Through his care for Ivo, he is now knowledgeable about the disease, and I believe would be a real asset to anyone needing a few hours of assistance each day. Much as I am grateful to the carers providing continuous care later in the disease, Rigo's efforts were in another league. With his permission, I'm giving his phone number (07932337783) and my email address for anyone seeking more information ([email protected]). Relevant only to those in London, given location.

    The very best of luck to all

    Aisling

    #2
    Aisling Byrne Heartfelt condolences on the loss of your beloved Ivo.

    Rigo sounds wonderful. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Aisling Byrne my condolences on your loss. Sounds like everyone should have a Rigo.

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        #4
        Aisling Byrne my thoughts are with you. The carers that assist are worth their weight in gold and although i am not at that point yet I am happy to know that some go above and beyond which makes all the difference. All my love x

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          #5
          Ye condolences to you. How lovely of you to give this information for Rigo and your email. Still offering support at this sad time for you.
          Very kind and considerate. Take care xx

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            #6
            Aisling Byrne sending my condolences for your loss. Sounds like Ringo is a real gem x
            Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

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              #7
              Aisling Byrne

              Condolences on your loss and so kind of you to think of others at such a sad time.
              Diagnosed 3rd November 2021 Bulbar Onset

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                #8
                Aisling Byrne So sorry for your sad news, and many thanks for thinking of us, and your amazing sounding carer. Hope someone can benefit his help, and sending love to you x
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                  #9
                  Aisling Byrne sincere condolences πŸ™
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                    #10
                    Heartfelt thanks to all

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