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Grieving for Mum

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    Grieving for Mum

    Hi

    I'm new here. Mum in in the latter part of her journey with MND and Dementia. She is 82 today and this last year has been heartbreaking. She is now asleep most of the time, seeing her so vulnerable and being unable to make any difference is terrible. Sometimes the grief is unbearable.

    #2
    Hi Deborah Layton sorry you find yourself here in such difficult circumstances. This is a horrible illness and it is heart breaking watching our loved ones go through so much. Whilst we can't solve it I'm sure you have made a big difference for your mum just by being there. Wishing you strength in this difficult time x

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      #3
      Hi Deborah

      I know just what you mean. My husband has mnd and ftd. This year he has deteriorated rapidly and now spends most of his time asleep. It's very upsetting to see him like this. I also have those feelings of what can I do to change things but I'm not sure if the benefit is for him or me. I just sit with him and hope he's dreaming about nice things. xx

      when i can think of something profound i will update this.

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        #4
        So sorry your having to go through this. I always think its harder on the family/partners etc. You have to observe all the suffering and yet be so strong.
        X
        Diagnosed May 2021 bulbar onset als.

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          #5
          Hi Deborah Layton. I’m so sorry to hear you are struggling with grief. I hope she’s at least comfortable while sleeping. It is so unbelievably hard to watch our loved ones progression with MND but we do it because there’s no choice but to try and stay as strong as we can for them.

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            #6
            Deborah Layton so sorry Deborah, it must be so hard for you at this time. I wish your Mum a happy birthday and hope she’s as comfortable as much as possible.xx

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              #7
              Deborah, sorry to hear of your grief whilst you had to watch your mother have both MND and dementia . I trust that she is sleeping peacefully, and I am sure your caring must be meaning so much to her. Love, Heather x
              Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                #8
                so sorry to hear this Deborah , life is so cruel x

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