What a week

[Doggymama]

Had a really tough week, been so worried about my husband, he has been so confused particularly in the mornings, his mobility has deteriorated, our OT is seeing to ceiling track hoists for us in 2 rooms. He has had a catheter fitted today and he may have to move from morphine to oxycodone. Hoping next week might be an easier one xx

[Ellie]

Doggymama I've been thinking about you both, Alison.

I'm sure the nurse has explained that the morning confusion your husband is experiencing is likely due to overnight CO₂ retention, which lessens when he is awake and upright.

Sending love xx

[Claireflo]

Doggymama I was just thinking of you this morning, wondering how things were going. Sorry its been a tough and worrying week. I hope next week is better for you and your husband x

[MMG]

Doggymama Sending kind thoughts and lots of hugs xxxxxx

[Doggymama]

Thank you for your kind replies. He’s so very tired and each day is such a struggle.. On the positive side our district nurse is so lovely as is the Macmillan team who are looking after him. Our OT is amazing. We are so lucky to live where we do. Much love and thanks to all of you for being there every step of the way xxx

[Zante]

Doggymama I too have been thinking of you and hoping you are managing as much as is possible xx

[Doggymama]

Things still not good, his urine is really dark red brown with low output. I’ve managed to get him to drink more but no difference, we’ve had a sample tested, no infection. He wasn’t so confused on waking but is confused now, he says he’s too hot but his feet feel freezing but he won’t let me cover them. I wish I knew how to help him xxx

[Ellie]

Doggymama Are the nurses still seeing him daily Alison, even on Sunday? xx

[Doggymama]

Nurse was here on Friday and I think she is coming tomorrow to check the catheter

[Ellie]

Have you a number for Macmillan to have a chat with them re hubby's condition? xx

[Doggymama]

Ellie I can ring them tomorrow, his Macmillan nurse I think was going to be in touch tomorrow.

[Claireflo]

Doggymama it's so hard to know how to help and what to do for the best but you are doing everything you can by being there supporting him through it all xx

[Piglet]

Doggymama hope the both district nurses can and macmillan staff help sort all out for your husband tomorrow. Your doing your very best. Are macmillan team available at weekends, I’m sure if you rang them they could give you sooner advice. Thinking of you.xx

[Doggymama]

Macmillan nurse came and he has a nasty UTI so now on antibiotics, he is stopping the morphine and going to be taking oxynorm and a slow release oxycodone. They are querying haloperidol too. She is also arranging a night sitter nurse from the local hospice to come one or two nights a week. xxx

[MMG]

Sending Hugs Alison. Make sure you try and get some rest yourself. xxx