I joined the forum quite recently when my wife was diagnosed with MND, so did not have a lot of interaction here. I finally found some time to sit down and pen my emotions and thoughts.
She had a final MND diagnosis end September 2022, and sadly passed away peacefully 06 January 2023.
Your deterioration was very rapid. I immersed myself in reading on life expectancy and held on to a belief that at least we can spend some time with you, He though, had other plans for you.
As a family we are grateful for the short time we could spend with you during the final months of your life.
I feel blesses for the almost 41 years of marriage and the joy of the kids you brought into this world. Though my heart is broken, I am at peace knowing that the disease would have gotten worse the longer you lived. Your deterioration was very rapid from two days before your passing, and at times I could see the sorrow in your eyes. This saddened me, knowing that you knew what the disease meant and how it was going to end.
You once told me that you wished you could just cry, but that you just could not. Don't worry, I saw the emotions in your eyes, and felt the sadness with you. When I asked you how you are, you never answered and rather asked me, how I was. The answer was always the same, forget how I am feeling, I will deal with my emotions in my own time. More importantly for me was that you're ok, even though I knew that you could never be ok. I remember the time I cried on your shoulder, and you comforted me as if nothing was wrong with you. You were truly a strong person.
I am glad that you could still laugh and smile, which was one of your traits that everyone will remember you by. You tried to be independent until the last and I admire your courage deeply.
Caring for you up until that last day, is what I will not trade for anything in the world.
The memories of you will linger long after your passing, and those are what that I will hold dear.
May you rest in eternal peace my dear wife.
With each passing day memories of you return.
I now listen to "Visiting Hours" with a totally different perspective.
She had a final MND diagnosis end September 2022, and sadly passed away peacefully 06 January 2023.
Your deterioration was very rapid. I immersed myself in reading on life expectancy and held on to a belief that at least we can spend some time with you, He though, had other plans for you.
As a family we are grateful for the short time we could spend with you during the final months of your life.
I feel blesses for the almost 41 years of marriage and the joy of the kids you brought into this world. Though my heart is broken, I am at peace knowing that the disease would have gotten worse the longer you lived. Your deterioration was very rapid from two days before your passing, and at times I could see the sorrow in your eyes. This saddened me, knowing that you knew what the disease meant and how it was going to end.
You once told me that you wished you could just cry, but that you just could not. Don't worry, I saw the emotions in your eyes, and felt the sadness with you. When I asked you how you are, you never answered and rather asked me, how I was. The answer was always the same, forget how I am feeling, I will deal with my emotions in my own time. More importantly for me was that you're ok, even though I knew that you could never be ok. I remember the time I cried on your shoulder, and you comforted me as if nothing was wrong with you. You were truly a strong person.
I am glad that you could still laugh and smile, which was one of your traits that everyone will remember you by. You tried to be independent until the last and I admire your courage deeply.
Caring for you up until that last day, is what I will not trade for anything in the world.
The memories of you will linger long after your passing, and those are what that I will hold dear.
May you rest in eternal peace my dear wife.
With each passing day memories of you return.
I now listen to "Visiting Hours" with a totally different perspective.
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